COST OF ILLNESS FOR NEUROMUSCULAR DISEASES IN THE UNITED STATES

被引：111

作者：

Larkindale, Jane ^{[1
]}

Yang, Wenya ^{[2
]}

Hogan, Paul F. ^{[2
]}

Simon, Carol J. ^{[3
]}

Zhang, Yiduo ^{[4
]}

Jain, Anjali ^{[2
]}

Habeeb-Louks, Elizabeth M. ^{[1
]}

Kennedy, Annie ^{[1
]}

Cwik, Valerie A. ^{[1
]}

机构：

[1] Muscular Dystrophy Assoc, Tucson, AZ 85718 USA

[2] Lewin Grp, Falls Church, VA USA

[3] Unitedhlth Ctr Hlth Reform, Minnetonka, MN USA

[4] MedImmune, Gaithersburg, MD USA

来源：

MUSCLE & NERVE | 2014年 / 49卷 / 03期

关键词：

amyotrophic lateral sclerosis; cost of illness; Duchenne Muscular Dystrophy; Myotonic Dystrophy; Neuromuscular diseases; AMYOTROPHIC-LATERAL-SCLEROSIS; DUCHENNE MUSCULAR-DYSTROPHY; QUALITY-OF-LIFE; CARE;

D O I：

10.1002/mus.23942

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

Introduction: We conducted a comprehensive study of the costs associated with amyotrophic lateral sclerosis (ALS), Duchenne muscular dystrophy (DMD). and myotonic dystrophy (DM) in the U.S. Methods: We determined the total impact on the U.S. economy, including direct medical costs, nonmedical costs, and loss of income. Medical costs were calculated using a commercial insurance database and Medicare claims data. Nonmedical and indirect costs were determined through a survey of families registered with the Muscular Dystrophy Association. Results: Medical costs were driven by outpatient care. Nonmedical costs were driven by the necessity to move or adapt housing for the patient and paid caregiving. Loss of income correlated significantly with the amount of care needed by the patient. Conclusions: We calculated the annual per-patient costs to be $63,693 for ALS, $50,952 for DMD, and $32,236 for DM. Population-wide national costs were $1,023 million (ALS), $787 million (DMD), and $448 million (DM). Muscle Nerve49:431-438, 2014

引用

页码：431 / 438

页数：8

共 16 条

[1] Effect of noninvasive positive-pressure ventilation on survival in amyotrophic lateral sclerosis [J].