Focused Attention on Positive Aspects of Dementia Care in Culturally and Linguistically Diverse Communities: Qualitative Insights from Australia

被引:4
作者
Antoniades, Josefine [1 ,2 ]
Croy, Samantha [1 ,3 ]
Gilbert, Andrew Simon [1 ,4 ]
Thodis, Antonia [1 ,5 ]
Medel, Carolina Navarro [1 ,6 ]
Do, Phuong Lan [1 ,7 ]
Ha Dang, Thu [1 ,8 ]
Kent, Mike [9 ]
Brijnath, Bianca [1 ,10 ]
机构
[1] Natl Ageing Res Inst, Social Gerontol, Melbourne, Vic, Australia
[2] Curtin Univ, Fac Humanities, Sch Media Creat Arts & Social Inquiry, Perth, WA, Australia
[3] Murdoch Childrens Res Inst, Melbourne, Vic, Australia
[4] La Trobe Univ, Dept Social Inquiry, Melbourne, Vic, Australia
[5] La Trobe Univ, Dept Dietet & Human Nutr, Melbourne, Vic, Australia
[6] Univ Melbourne, Safer Families Ctr Res Excellence, Melbourne, Vic, Australia
[7] Deakin Univ, Sch Hlth & Social Dev, Melbourne, Vic, Australia
[8] Swinburne Univ Technol, Fac Hlth Arts & Design, Melbourne, Vic, Australia
[9] Curtin Univ, Ctr Culture & Technol, Perth, WA, Australia
[10] Univ Western Australia, Sch Social Sci, Perth, WA, Australia
基金
英国医学研究理事会;
关键词
Australia; dementia; culture; care; ethnicity; positive aspects; CAREGIVING RESEARCH; GAIN; INSTITUTIONALIZATION; EXPERIENCES; ETHNICITY; OUTCOMES; HEALTH; STRAIN;
D O I
10.1080/07317115.2022.2158768
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
ObjectivesDementia care scholarship focuses on care challenges and less on positive aspects of care, especially among culturally and linguistically diverse (CALD) carers outside the United States. This article investigates positive aspects of dementia care across eight CALD groups in Australia.MethodsWe analyzed interviews of 112 family carers using a four-domain framework covering: a sense of personal growth, feelings of mutuality, increases in family cohesion, and a sense of personal accomplishment.ResultsPositive associations with care are derived from past relationships, feelings of mutual obligation, valuing changed relationships and enjoying spending time with the person with dementia. Positive aspects of care were not associated with increased family cohesion except in Vietnamese and Arab families; neither was use of ethno-specific residential aged care, except for Greek and Italian families. Religion and spirituality as a coping and comforting mechanism was inconsistently expressed.ConclusionsThe study reveals the multi-dimensional nature of care, what resonates, and diverges across CALD populations. Knowing which parts of the framework apply and which do not is useful for interventions seeking to enhance positive aspects of care.Clinical implicationsMigrant populations are varied and dynamic, and practitioners should be mindful of differences within and between ethnic minority groups.
引用
收藏
页码:208 / 219
页数:12
相关论文
共 53 条
[1]  
ABS, 2017, 2016 CENS MULT
[2]  
ABS, 2017, 2016 CENS REL AUSTR
[3]  
Acton Gayle J, 2003, J Holist Nurs, V21, P117, DOI 10.1177/0898010103021002003
[4]   Family caregivers' subjective experiences of satisfaction in dementia care:: aspects of burden, subjective health and sense of coherence [J].
Andrén, S ;
Elmståhl, S .
SCANDINAVIAN JOURNAL OF CARING SCIENCES, 2005, 19 (02) :157-168
[5]   Turkish Adult Children as Caregivers of Parents with Alzheimer's Disease: Perceptions and Caregiving Experiences [J].
Ar, Yagmur ;
Karanci, A. Nuray .
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 2019, 18 (03) :882-902
[6]   The need for a 'migration turn' in aged care policy: a comparative study of Australian and German migration policies and their impact on migrant aged care [J].
Brandhorst, R. ;
Baldassar, L. ;
Wilding, R. .
JOURNAL OF ETHNIC AND MIGRATION STUDIES, 2021, 47 (01) :249-266
[7]  
Brijnath B., 2021, HDB AGING HLTH PUBLI, P1, DOI [10.1007/978-981-16-1914-4_41-1, DOI 10.1007/978-981-16-1914-4_41-1]
[8]   Boundary Crossers: How Providers Facilitate Ethnic Minority Families' Access to Dementia Services [J].
Brijnath, Bianca ;
Gilbert, Andrew S. ;
Antoniades, Josefine ;
Croy, Samantha ;
Kent, Mike ;
Ellis, Katie ;
Browning, Colette ;
Goeman, Dianne ;
Adams, Jon .
JOURNALS OF GERONTOLOGY SERIES B-PSYCHOLOGICAL SCIENCES AND SOCIAL SCIENCES, 2022, 77 (02) :396-406
[9]   Beyond crisis: Enacted sense-making among ethnic minority carers of people with dementia in Australia [J].
Brijnath, Bianca ;
Gilbert, Andrew Simon ;
Kent, Mike ;
Ellis, Katie ;
Browning, Colette ;
Goeman, Dianne ;
Adams, Jon ;
Antoniades, Josefine .
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 2021, 20 (06) :1910-1924
[10]  
Butcher H.K., 2002, J AGING IDENTITY, V7, P113, DOI DOI 10.1023/A:1015439218276