Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation

被引：9

作者：

Van Riper, Marcia ^{[1
]}

Knafl, George J. ^{[1
]}

Barbieri-Figueiredo, Maria do Ceu ^{[3
]}

Caples, Maria ^{[4
]}

Choi, Hyunkyung ^{[5
,6
]}

de Graaf, Gert ^{[7
]}

Duarte, Elysangela Dittz ^{[8
]}

Honda, Junko ^{[9
]}

Marta, Elena ^{[10
]}

Phetrasuwan, Supapak ^{[12
]}

Alfieri, Sara ^{[11
]}

Angelo, Margareth ^{[13
]}

Deoisres, Wannee ^{[14
]}

Fleming, Louise ^{[2
]}

dos Santos, Aline Soares ^{[15
]}

Rocha da Silva, Maria Joao ^{[16
]}

Skelton, Beth ^{[2
]}

van der Veek, Shelley ^{[17
]}

Knafl, Kathleen A. ^{[1
]}

机构：

[1] Univ N Carolina, Sch Nursing, Carrington Hall,Room 433,Campus Box 7460, Chapel Hill, NC 27599 USA

[2] Univ N Carolina, Chapel Hill, NC 27515 USA

[3] Univ Porto, Ctr Hlth Technol & Serv Res, Porto, Portugal

[4] Univ Coll Cork, Sch Nursing & Midwifery, Cork, Ireland

[5] Kyungpook Natl Univ, Coll Nursing, Daegu, South Korea

[6] Kyungpook Natl Univ, Res Inst Nursing Sci, Daegu, South Korea

[7] Dutch Down Syndrome Fdn, Meppel, Netherlands

[8] Univ Fed Minas Gerais, Belo Horizonte, MG, Brazil

[9] Univ Hyogo, Coll Art & Sci, Akashi, Hyogo, Japan

[10] Univ Cattolica Sacro Cuore, Social & Community Psychol, Psychol Dept, Milan, Italy

[11] Univ Cattolica Sacro Cuore, Milan, Italy

[12] Mahidol Univ, Nursing, Bangkoknoi, Thailand

[13] Univ Sao Paulo, Grp Studies Family Nursing, Sch Nursing, Sao Paulo, Brazil

[14] Rambhai Barni Rajabhat Univ, Fac Nursing, Muang, Thailand

[15] Garden Valley Sch Div, Winkler, MB, Canada

[16] Univ Porto, Nursing Sci, Porto, Portugal

[17] Leiden Univ, Leiden, Netherlands

来源：

JOURNAL OF FAMILY NURSING | 2021年 / 27卷 / 01期

基金：

日本学术振兴会;

关键词：

family; Down syndrome; family management; measurement; quantitative; cross-cultural; QUALITY-OF-LIFE; CHILDHOOD CHRONIC CONDITIONS; AUTISM SPECTRUM DISORDERS; YOUNG-PEOPLE; INTELLECTUAL DISABILITY; MATERNAL PERCEPTIONS; SYNDROME ADVANTAGE; CHINESE CHILDREN; MOTHERS; ADAPTATION;

D O I：

10.1177/1074840720975167

中图分类号：

D669 [社会生活与社会问题]; C913 [社会生活与社会问题];

学科分类号：

1204 ;

摘要：

Down syndrome (DS) is the most common genetic cause of intellectual disability worldwide. The purpose of this analysis was to determine the internal consistency reliability of eight language versions of the Family Management Measure (FaMM) and compare family management of DS across cultures. A total of 2,740 parents of individuals with DS from 11 countries completed the FaMM. The analysis provided evidence of internal consistency reliability exceeding .70 for four of six FaMM scales for the entire sample. Across countries, there was a pattern of positive family management. Cross-cultural comparisons revealed parents from Brazil, Spain, and the United States had the most positive family management and respondents from Ireland, Italy, Japan, and Korea had the least positive. The rankings were mixed for the four remaining countries. These findings provide evidence of overall strong internal consistency reliability of the FaMM. More cross-cultural research is needed to understand how social determinants of health influence family management in families of individuals with DS.

引用

页码：8 / 22

页数：15

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