Consensus guidelines into the management of epilepsy in adults with an intellectual disability

被引:58
|
作者
Kerr, M. [1 ]
Scheepers, M. [2 ]
Arvio, M. [3 ]
Beavis, J.
Brandt, C. [4 ]
Brown, S. [5 ]
Huber, B. [6 ]
Iivanainen, M. [7 ,8 ]
Louisse, A. C. [9 ]
Martin, P. [10 ]
Marson, A. G. [11 ]
Prasher, V. [12 ]
Singh, B. K. [13 ]
Veendrick, M. [14 ]
Wallace, R. A. [15 ]
机构
[1] Cardiff Univ, Sch Med, Welsh Ctr Learning Disabil, Cardiff CF14 1YS, S Glam, Wales
[2] Heathfield, Gloucester, England
[3] Paijat Hame Cent Hosp, Lahti, Finland
[4] Bethel Epilepsy Ctr, Dept Gen Epileptol, Bielefeld, Germany
[5] Peninsula Med Sch, Cornwall Partnership NHS Trust, Neuropsychiat Epilepsy & Memory Serv, Plymouth, Cornwall, England
[6] Bethel Epilepsy Ctr, Bielefeld, Germany
[7] Univ Helsinki, Dept Child Neurol, Helsinki, Finland
[8] Rinnekoti Res Ctr, Espoo, Finland
[9] Ipse Bruggen, Zwammerdam, Netherlands
[10] Epilepsy Ctr, Seguin Clin Adults Severe Intellectual Disabil, Kork, Kehl Kork, Germany
[11] Univ Liverpool, Unit Neurol Sci, Liverpool L69 3BX, Merseyside, England
[12] Monyhull Birmingham & John Moores Univ, Liverpool, Merseyside, England
[13] New York Med Coll, Westchester Inst Human Dev, Valhalla, NY 10595 USA
[14] Kempenhaage, Heeze, Netherlands
[15] Specialist Healthcare Adults Intellectual Disabil, Hobart, Tas, Australia
关键词
epilepsy; intellectual disability guidelines consensus; ANTIEPILEPTIC DRUGS; LEARNING-DISABILITY; OUTCOME MEASURES; DOUBLE-BLIND; SEIZURES; TRIAL; TOPIRAMATE; STATEMENT;
D O I
10.1111/j.1365-2788.2009.01182.x
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Background Epilepsy has a pervasive impact on the lives of people with intellectual disability and their carers. The delivery of high-quality care is impacted on by the complexity and diversity of epilepsy in this population. This article presents the results of a consensus clinical guideline process. Results A Delphi process identified a list of priority areas for the development of evidence-based guidelines. All guidelines were graded and consensus on scoring was achieved across the guideline group. Conclusion There is a dearth of high-quality evidence from well-constructed studies on which to base guidance. However, the development of internationally derived consensus guidelines may further support the management of epilepsy in adults with an intellectual disability.
引用
收藏
页码:687 / 694
页数:8
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