'I don't feel like I'm in this on my own': Peer support for mothers of children with intellectual disability and challenging behaviour

被引:12
作者
Dew, Angela [1 ]
Collings, Susan [1 ,2 ]
Dowse, Leanne [1 ]
Meltzer, Ariella [1 ]
Smith, Louisa [1 ,3 ]
机构
[1] UNSW Sydney, Sydney, NSW, Australia
[2] Univ Sydney, Sydney, NSW, Australia
[3] Univ Wollongong, Wollongong, NSW, Australia
关键词
parent peer support program; intellectual disability; challenging behaviour; qualitative; PARENTS; FAMILY; INDIVIDUALS; RESILIENCE; STRESS; PEOPLE;
D O I
10.1177/1744629519843012
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
This article reports on the peer support experiences of mothers with a son or daughter with intellectual disability and challenging behaviour. Engagement in parent peer support programs can improve family quality of life and may have multifaceted benefits at the interpersonal, intra-individual self-change and sociopolitical levels. Thirteen mothers were interviewed about their experiences of participating in a parent peer support program. Thematic analysis focused on the process elements of the program that contributed to its effectiveness in providing support to parents. There were three process-related themes: the role of a paid coordinator, diversity of engagement strategies and matching of peer support partners. Mothers appreciated the opportunities provided to engage in a range of strategies tailored to individual preferences, time and capacity constraints, supported by the paid coordinator. One-to-one peer support proved difficult to sustain given the challenges mothers faced in their day-to-day lives.
引用
收藏
页码:344 / 358
页数:15
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