Family caregivers' and professionals' experiences of supporting people living with dementia's nutrition and hydration needs towards the end of life

被引：12

作者：

Barrado-Martin, Yolanda ^{[1
]}

Nair, Pushpa ^{[1
]}

Anantapong, Kanthee ^{[2
,3
]}

Aker, Narin ^{[1
]}

Moore, Kirsten J. ^{[2
,4
]}

Smith, Christina H. ^{[5
]}

Rait, Greta ^{[1
]}

Sampson, Elizabeth L. ^{[2
,6
]}

Manthorpe, Jill ^{[7
,8
]}

Davies, Nathan ^{[1
,2
]}

机构：

[1] UCL, Res Dept Primary Care & Populat Hlth, Ctr Ageing Populat Studies, Upper 3rd Floor,Royal Free Campus,Rowland Hill St, London W3 2PF, England

[2] UCL, Div Psychiat, Marie Curie Palliat Care Res Dept, London, England

[3] Prince Songkla Univ, Dept Psychiat, Fac Med, Hat Yai, Thailand

[4] Natl Ageing Res Inst, Melbourne Ageing Res Collaborat, Melbourne, Vic, Australia

[5] UCL, Div Psychol & Language Sci, Language & Cognit, London, England

[6] North Middlesex Univ Hosp, Barnet Enfield & Haringey Mental Hlth Trust Liais, Edmonton, England

[7] Kings Coll London, NIHR Hlth & Social Care Workforce Res Unit, London, England

[8] Kings Coll London, NIHR Appl Res Collaborat ARC South London, London, England

来源：

HEALTH & SOCIAL CARE IN THE COMMUNITY | 2022年 / 30卷 / 01期

关键词：

challenges and strategies; dysphagia; eating and drinking; palliative care; qualitative research; ARTIFICIAL NUTRITION; DECISION-MAKING; HOME RESIDENTS; OF-LIFE; CARE; FOOD;

D O I：

10.1111/hsc.13404

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

The aim of this paper was to understand the needs of family caregivers and professionals supporting people living with dementia with eating and drinking difficulties towards the end of life and the strategies they use to overcome them. A total of 41 semi-structured interviews with family caregivers (n = 21) and professionals (n = 20) were conducted in London and surrounding areas of England. Interviews were audio-recorded and transcribed verbatim. Four themes were identified: caregivers accessing and seeking help, perceived priorities of care, professionals' supportiveness and educational role, and strategies. Caregivers often struggle as they are not aware of the eating and drinking difficulties associated with dementia's progression. Care can change over time with families prioritising a person's comfort towards the end of life rather than ensuring a particular level of nutrition. Mutual support is required by both professionals and caregivers to enhance the care of the person living with dementia. Cognitive difficulties are often behind initial eating and drinking challenges in dementia, whereas physical challenges take over towards the later stages. Flexibility and creativity are key to adapting to changing needs. There is a need to raise awareness of the eating and drinking challenges associated with the progression of dementia. Professionals can help caregivers embark on the transition towards focussing on comfort and enjoyment of eating and drinking near the end of life rather than nutrition. This is particularly relevant for those caring for a relative living at home. Caregivers' input is needed to tailor professionals' recommendations.

引用

页码：307 / 318

页数：12

共 29 条

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