What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective

被引:44
作者
Kuluski, Kerry [1 ,2 ]
Peckham, Allie [3 ]
Gill, Ashlinder [3 ]
Gagnon, Dominique [4 ]
Wong-Cornall, Cecilia [5 ]
McKillop, Ann [5 ]
Parsons, John [5 ]
Sheridan, Nicolette [6 ]
机构
[1] Trillium Hlth Partners, Inst Better Hlth, Mississauga, ON, Canada
[2] Univ Toronto, Toronto, ON, Canada
[3] Univ Toronto, Dalla Lana Sch Publ Hlth, Toronto, ON, Canada
[4] Univ Quebec Abitibi Temiscamingue, Rouyn Noranda, PQ, Canada
[5] Univ Auckland, Auckland, New Zealand
[6] Massey Univ, Auckland, New Zealand
关键词
multimorbidity; primary health care; patient experience; caregiver; Canada; New Zealand; qualitative; person centered care; DECISION-MAKING; PATIENT; EXPERIENCES; FRAMEWORK; MODEL;
D O I
10.5334/ijic.4655
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Introduction: Health systems are striving to design and deliver care that is 'person centered'-aligned with the needs and preferences of those receiving it; however, it is unclear what older people and their caregivers value in their care. This paper captures attributes of care that are important to older people and their caregivers. Methods: This qualitative descriptive study entailed 1-1 interviews with older adults with multimor-bidity receiving community based primary health care in Canada and New Zealand and caregivers. Data were analyzed to identify core attributes of care, important to participants. Findings: Feeling heard, appreciated and comfortable; having someone to count on; easily accessing health and social care; knowing how to manage health and what to expect; feeling safe; and being independent were valued. Each attribute had several characteristics including: being treated like a friend; having contact information of a responsive provider; being accompanied to medical and social activities; being given clear treatment options including what to expect; having homes adapted to support limitations and having the opportunity to participate in meaningful hobbies. Conclusions: Attributes of good care extend beyond disease management. While our findings include activities that characterize these attributes, further research on implementation barriers and facilitators is required.
引用
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页数:15
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