Quality of Life in Amyotrophic Lateral Sclerosis

被引:26
作者
Bromberg, Mark B. [1 ]
机构
[1] Clin Neurosci Ctr, Dept Neurol, Salt Lake City, UT 84132 USA
关键词
D O I
10.1016/j.pmr.2008.02.005
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Although quality of life is difficult to define clearly, a number of instruments and questionnaires have been developed and applied to patients who have amyotrophic lateral sclerosis (ALS). This article reviews the spectrum of quality-of-life questionnaires and instruments used for ALS and the data generated from them. It discusses positive and negative factors that can affect quality of life for the patient and caregiver and concludes with suggestions for ongoing management to enhance quality of life.
引用
收藏
页码:591 / +
页数:17
相关论文
共 72 条
[1]   Cross-cultural variation in mental health at end of life in patients with ALS [J].
Albert, S. M. ;
Wasner, M. ;
Tider, T. ;
Drory, V. E. ;
Borasio, G. D. .
NEUROLOGY, 2007, 68 (13) :1058-1061
[2]   Wish to die in end-stage ALS [J].
Albert, SM ;
Rabkin, JG ;
Del Bene, ML ;
Tider, T ;
O'Sullivan, I ;
Rowland, LP ;
Mitsumoto, H .
NEUROLOGY, 2005, 65 (01) :68-74
[3]   The disability paradox: high quality of life against all odds [J].
Albrecht, GL ;
Devlieger, PJ .
SOCIAL SCIENCE & MEDICINE, 1999, 48 (08) :977-988
[4]   QUANTITATIVE MOTOR-ASSESSMENT IN AMYOTROPHIC-LATERAL-SCLEROSIS [J].
ANDRES, PL ;
HEDLUND, W ;
FINISON, L ;
CONLON, T ;
FELMUS, M ;
MUNSAT, TL .
NEUROLOGY, 1986, 36 (07) :937-941
[5]   LIFE SATISFACTION OF INDIVIDUALS WITH DUCHENNE MUSCULAR-DYSTROPHY USING LONG-TERM MECHANICAL VENTILATORY SUPPORT [J].
BACH, JR ;
CAMPAGNOLO, DI ;
HOEMAN, S .
AMERICAN JOURNAL OF PHYSICAL MEDICINE & REHABILITATION, 1991, 70 (03) :129-135
[6]   The doctor's letter of condolence. [J].
Bedell, SE ;
Cadenhead, K ;
Graboys, TB .
NEW ENGLAND JOURNAL OF MEDICINE, 2001, 344 (15) :1162-1164
[7]   THE SICKNESS IMPACT PROFILE - DEVELOPMENT AND FINAL REVISION OF A HEALTH-STATUS MEASURE [J].
BERGNER, M ;
BOBBITT, RA ;
CARTER, WB ;
GILSON, BS .
MEDICAL CARE, 1981, 19 (08) :787-805
[8]   Noninvasive ventilation in ALS - Indications and effect on quality of life [J].
Bourke, SC ;
Bullock, RE ;
Williams, TL ;
Shaw, PJ ;
Gibson, GJ .
NEUROLOGY, 2003, 61 (02) :171-177
[9]   Respiratory function vs sleep-disordered breathing as predictors of QOL in ALS [J].
Bourke, SC ;
Shaw, PJ ;
Gibson, GJ .
NEUROLOGY, 2001, 57 (11) :2040-2044
[10]   Comparison of instruments addressing quality of life in patients with ALS and their caregivers [J].
Bromberg, MB ;
Forshew, DA .
NEUROLOGY, 2002, 58 (02) :320-322