EURObservational Research Programme: a worldwide registry on peripartum cardiomyopathy (PPCM) in conjunction with the Heart Failure Association of the European Society of Cardiology Working Group on PPCM

被引:80
|
作者
Sliwa, Karen [1 ]
Hilfiker-Kleiner, Denise [2 ]
Mebazaa, Alexandre [3 ]
Petrie, Mark C. [4 ]
Maggioni, Aldo P. [5 ]
Regitz-Zagrosek, Vera [6 ]
Schaufelberger, Maria [7 ]
Tavazzi, Luigi [8 ]
van Veldhuisen, Dirk J. [9 ]
Roos-Hesslink, Jolien W. [10 ]
Shah, Ajay J. [11 ]
Seferovic, Petar M. [12 ]
Elkayam, Uri [13 ]
van Spaendonck-Zwarts, Karin [14 ]
Bachelier-Walenta, Katrin [15 ]
Mouquet, Frederic [16 ]
Kraigher-Krainer, Elisabeth [17 ,18 ]
Hall, Roger [19 ]
Ponikowski, Piotr [20 ]
McMurray, John J. V. [21 ]
Pieske, Burkert [22 ]
机构
[1] Univ Cape Town, Hatter Inst Cardiovasc Res Africa, ZA-7700 Rondebosch, South Africa
[2] Hannover Med Sch, D-30623 Hannover, Germany
[3] Univ Paris Diderot, Hop Lariboisiere, Inserm 942, Paris, France
[4] Golden Jubilee Natl Hosp, Glasgow, Lanark, Scotland
[5] European Soc Cardiol, EURObservat Res Programme EORP, Sophia Antipolis, France
[6] Charite Univ Med Berlin, Inst Gender Med GiM, Berlin, Germany
[7] Sahlgrens Univ Hosp, Dept Med, Gothenburg, Sweden
[8] Maria Cecilia Hosp, ES Hlth Sci Fdn, GVM Care & Res, Cotignola, Italy
[9] Univ Groningen, Univ Med Ctr Groningen, Groningen, Netherlands
[10] Erasmus MC, Dept Cardiol, Thoraxctr, Rotterdam, Netherlands
[11] Kings Coll London BHF Ctr Excellence, London, England
[12] Univ Med Ctr, Belgrade, Serbia
[13] Univ So Calif, Los Angeles, CA USA
[14] Univ Amsterdam, Acad Med Ctr, Dept Genet, NL-1012 WX Amsterdam, Netherlands
[15] Univ Klinikum Saarlandes, Klin Innere Med Kardiol Angiol & Internist Intens, Homburg, Saar, Germany
[16] CHRU Lille, Hop Cardiol, Serv Cardiol, Pole Cardiovasc & Pulm, Lille, France
[17] Med Univ Graz, Dept Cardiol, Graz, Austria
[18] Ludwig Boltzmann Inst Translat Heart Failure Res, Graz, Austria
[19] Norfolk & Norwich Univ Hosp, Norwich, Norfolk, England
[20] Mil Hosp, Ctr Heart Dis, Dept Cardiol, Wroclaw, Poland
[21] Univ Glasgow, Western Infirm, Dept Cardiol, Glasgow G11 6NT, Lanark, Scotland
[22] Med Univ Graz, Dept Cardiol, Graz, Austria
关键词
Registry; Peripartum Cardiomyopathy; Definition; CLINICAL CHARACTERISTICS; SYSTOLIC FUNCTION; PREGNANCY; OUTCOMES; MANAGEMENT; PILOT; WOMEN; EPIDEMIOLOGY; IMBALANCE; DIAGNOSIS;
D O I
10.1002/ejhf.68
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background The EURObservational Research Programme is a rolling programme of cardiovascular registries and surveys of the European Society of Cardiology (ESC). These registries will provide information on the nature of cardiovascular disease and its management. This manuscript provides an update on new literature on peripartum cardiomyopathy (PPCM), published since the 2010 Position Statement from the Heart Failure Association of the European Society of Cardiology Working Group on PPCM, and describes a new registry on this under-recognized condition. Peripartum cardiomyopathy is an idiopathic cardiomyopathy presenting with heart failure secondary to left ventricular systolic dysfunction towards the end of the pregnancy, or in the months following delivery, where no other cause for heart failure is found. Aims The PPCM Registry aims to describe disease presentation, comorbidities, diagnostic and therapeutic management of patients with PPCM, as well as information on their offspring. Centres not only from ESC and ESC-affiliated countries, but from around the world, are encouraged to participate. Methods A prospective registry on patients presenting with PPCM. At the time of writing, approximately 100 patients have been enrolled from 20 countries. All data entry is online via secure passwords and is supported by well-trained information technology personnel. Conclusion The EURObservational Research Programme will allow a comparison of women from around the world, from different ethnic backgrounds, presenting with PPCM and will report on their 6 month and 12 month outcomes. The study aims to include 1000 patients and follow them for 1 year. New centres volunteering to participate in the study will be welcomed.
引用
收藏
页码:583 / 591
页数:9
相关论文
共 50 条
  • [21] Organization of heart failure management in European Society of Cardiology member countries: survey of the Heart Failure Association of the European Society of Cardiology in collaboration with the Heart Failure National Societies/Working Groups
    Seferovic, Petar M.
    Stoerk, Stefan
    Filippatos, Gerasimos
    Mareev, Viacheslav
    Kavoliuniene, Ausra
    Ristic, Arsen D.
    Ponikowski, Piotr
    McMurray, John
    Maggioni, Aldo
    Ruschitzka, Frank
    van Veldhuisen, Dirk J.
    Coats, Andrew
    Piepoli, Massimo
    McDonagh, Theresa
    Riley, Jillian
    Hoes, Arno
    Pieske, Burkert
    Dobric, Milan
    Papp, Zoltan
    Mebazaa, Alexandre
    Parissis, John
    Ben Gal, Tuvia
    Vinereanu, Dragos
    Brito, Dulce
    Altenberger, Johann
    Gatzov, Plamen
    Milinkovic, Ivan
    Hradec, Jaromir
    Trochu, Jean-Noel
    Amir, Offer
    Moura, Brenda
    Lainscak, Mitja
    Comin, Josep
    Wikstroem, Gerhard
    Anker, Stefan
    EUROPEAN JOURNAL OF HEART FAILURE, 2013, 15 (09) : 947 - 959
  • [22] Spanish Heart Transplant Registry. 29th Official Report of the Spanish Society of Cardiology Working Group on Heart Failure
    Gonzalez-Vilchez, Francisco
    Almenar-Bonet, Luis
    Crespo-Leiro, Maria G.
    Alonso-Pulpon, Luis
    Gonzalez-Costelo, Jose
    Manuel Sobrino-Marquez, Jose
    Maria Arizon del Prado, Jose
    Sousa-Casasnovas, Iago
    Delgado Jimenez, Juan
    Perez-Villa, Felix
    Segovia-Cubero, Javier
    Gomez-Buena, Manuel
    Hernandez-Perez, Francisco
    Martinez-Penades, Soledad
    Cebrian-Pinar, Monica
    Lopez-Vilella, Raquel
    Sanchez-Lazaro, Ignacio
    Martinez-Dolz, Luis
    Paniagua-Martin, Maria J.
    Barge-Caballero, Eduardo
    Barge-Caballero, Gonzalo
    Couto-Mallon, David
    Lopez-Granados, Amador
    Segura-Saintgerons, Carmen
    Mesa, Dolores
    Ruiz, Martin
    Romo, Elias
    Carrasco, Francisco
    Lopez-Aguilera, Jose
    Cobo, Manuel
    Llano-Cardenal, Miguel
    Vazquez de Prada, Jose A.
    Nistal-Herrera, Francisco
    Jesus Valero, Maria
    Fernandez-Yanez, Juan
    Navas, Paula
    Ortiz, Carlos
    Villa, Adolfo
    Zatarain, Eduardo
    Martinez-Selles, Manuel
    Dolores Garcia-Cosio, Maria
    Moran-Fernandez, Laura
    Blazquez, Zorba
    Roig-Minguell, Eulalia
    Brossa-Loidi, Vicens
    Mirabet-Perez, Sonia
    Lopez-Lopez, Laura
    Lage-Galle, Ernesto
    Rangel-Sousa, Diego
    Manito-Lorite, Nicolas
    REVISTA ESPANOLA DE CARDIOLOGIA, 2018, 71 (11): : 952 - 960
  • [23] Reperfusion therapy for ST-elevation myocardial infarction complicated by cardiogenic shock: the European Society of Cardiology EurObservational programme acute cardiovascular care-European association of PCI ST-elevation myocardial infarction registry
    Zeymer, Uwe
    Ludman, Peter
    Danchin, Nicolas
    Kala, Petr
    Laroche, Cecile
    Gale, Chris P.
    Maggioni, Aldo P.
    Siabani, Soraya
    Sadeghi, Masoumeh
    Wafa, Ahmed
    Bartus, Stanislaw
    Weidinger, Franz
    EUROPEAN HEART JOURNAL-ACUTE CARDIOVASCULAR CARE, 2022, 11 (06) : 481 - 490
  • [24] Pregnancy Outcomes in Women After Arterial Switch Operation for Transposition of the Great Arteries: Results From ROPAC (Registry of Pregnancy and Cardiac Disease) of the European Society of Cardiology EURObservational Research Programme
    Tutarel, Oktay
    Ramlakhan, Karishma P.
    Baris, Lucia
    Subirana, Maria T.
    Bouchardy, Judith
    Nemes, Attila
    Vejlstrup, Niels G.
    Osipova, Olga A.
    Johnson, Mark R.
    Hall, Roger
    Roos-Hesselink, Jolien W.
    JOURNAL OF THE AMERICAN HEART ASSOCIATION, 2021, 10 (01): : 1 - 11
  • [25] Adherence of heart failure patients to exercise: barriers and possible solutions A position statement of the Study Group on Exercise Training in Heart Failure of the Heart Failure Association of the European Society of Cardiology
    Conraads, Viviane M.
    Deaton, Christi
    Piotrowicz, Ewa
    Santaularia, Nuria
    Tierney, Stephanie
    Piepoli, Massimo F.
    Pieske, Burkert
    Schmid, Jean-Paul
    Dickstein, Kenneth
    Ponikowski, Piotr P.
    Jaarsma, Tiny
    EUROPEAN JOURNAL OF HEART FAILURE, 2012, 14 (05) : 451 - 458
  • [26] Care of patients with ST-elevation myocardial infarction: an international analysis of quality indicators in the acute coronary syndrome STEMI Registry of the EURObservational Research Programme and ACVC and EAPCI Associations of the European Society of Cardiology in 11 462 patients
    Ludman, Peter
    Zeymer, Uwe
    Danchin, Nicolas
    Kala, Petr
    Laroche, Cecile
    Sadeghi, Masoumeh
    Caporale, Roberto
    Shaheen, Sameh Mohamed
    Legutko, Jacek
    Iakobishvili, Zaza
    Alhabib, Khalid F.
    Motovska, Zuzana
    Studencan, Martin
    Mimoso, Jorge
    Becker, David
    Alexopoulos, Dimitrios
    Kereseselidze, Zviad
    Stojkovic, Sinisa
    Zelveian, Parounak
    Goda, Artan
    Mirrakhimov, Erkin
    Bajraktari, Gani
    Farhan, Hasan Ali
    Serpytis, Pranas
    Raungaard, Bent
    Marandi, Toomas
    Moore, Alice May
    Quinn, Martin
    Karjalainen, Pasi Paavo
    Tatu-Chitoiu, Gabriel
    Gale, Chris P.
    Maggioni, Aldo P.
    Weidinger, Franz
    EUROPEAN HEART JOURNAL-ACUTE CARDIOVASCULAR CARE, 2023, 12 (01) : 22 - 37
  • [27] Registry on Heart Transplantation. XX Official Report of the Working Group on Heart Failure and Heart Transplantation of the Spanish Society of Cardiology (1984-2008)
    Almenar Bonet, Luis
    CIRUGIA CARDIOVASCULAR, 2009, 16 (03): : 253 - 262
  • [28] A prospective survey in European Society of Cardiology member countries of atrial fibrillation management: baseline results of EURObservational Research Programme Atrial Fibrillation (EORP-AF) Pilot General Registry
    Lip, Gregory Y. H.
    Laroche, Cecile
    Dan, Gheorghe-Andrei
    Santini, Massimo
    Kalarus, Zbigniew
    Rasmussen, Lars Hvilsted
    Oliveira, Mario Martins
    Mairesse, Georges
    Crijns, Harry J. G. M.
    Simantirakis, Emmanouil
    Atar, Dan
    Kirchhof, Paulus
    Vardas, Panos
    Tavazzi, Luigi
    Maggioni, Aldo P.
    EUROPACE, 2014, 16 (03): : 308 - 319
  • [29] Spanish Heart Transplant Registry. 28th Official Report of the Spanish Society of Cardiology Working Group on Heart Failure (1984-2016)
    Gonzalez-Vilchez, Francisco
    Gomez-Bueno, Manuel
    Almenar-Bonet, Luis
    Crespo-Leiro, Maria G.
    Arizon del Prado, Jose M.
    Delgado-Jimenez, Juan
    Sousa-Casasnovas, Iago
    Brossa-Loidi, Vicens
    Manuel Sobrino-Marquez, Jose
    Gonzalez-Costelo, Jose
    REVISTA ESPANOLA DE CARDIOLOGIA, 2017, 70 (12): : 1098 - 1109
  • [30] Recommendations for participation in competitive sport in adolescent and adult athletes with Congenital Heart Disease (CHD): position statement of the Sports Cardiology & Exercise Section of the European Association of Preventive Cardiology (EAPC), the European Society of Cardiology (ESC) Working Group on Adult Congenital Heart Disease and the Sports Cardiology, Physical Activity and Prevention Working Group of the Association for European Paediatric and Congenital Cardiology (AEPC)
    Budts, Werner
    Pieles, Guido E.
    Roos-Hesselink, Jolien W.
    de la Garza, Maria Sanz
    D'Ascenzi, Flavio
    Giannakoulas, George
    Mueller, Jan
    Oberhoffer, Renate
    Ehringer-Schetitska, Doris
    Herceg-Cavrak, Vesna
    Gabriel, Harald
    Corrado, Domenico
    van Buuren, Frank
    Niebauer, Josef
    Borjesson, Mats
    Caselli, Stefano
    Fritsch, Peter
    Pelliccia, Antonio
    Heidbuchel, Hein
    Sharma, Sanjay
    Stuart, A. Graham
    Papadakis, Michael
    EUROPEAN HEART JOURNAL, 2020, 41 (43) : 4191 - +