Needs of Informal Caregivers of Patients With Head and Neck Cancer: A Systematic Review

被引:19
作者
Wang, Tongyao [1 ]
Mazanec, Susan R. [1 ]
Voss, Joachim G. [1 ,2 ]
机构
[1] Case Western Reserve Univ, Frances Payne Bolton Sch Nursing, Cleveland, OH 44106 USA
[2] Case Western Reserve Univ, PhD Program, Cleveland, OH 44106 USA
关键词
head and neck cancer; informal caregivers; informational; psychological; social; QUALITY-OF-LIFE; SUPPORTIVE CARE NEEDS; SOCIAL SUPPORT; FAMILY CAREGIVERS; PALLIATIVE CARE; ORAL-CANCER; DEPRESSION; EXPERIENCE; INSTRUMENT; SURVIVORS;
D O I
10.1188/21.ONF.11-29
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
PROBLEM IDENTIFICATION: Informal caregivers for patients with head and neck cancer perform complex caregiving tasks on a daily basis, but caregivers' needs are rarely acknowledged or addressed in current healthcare practice. LITERATURE SEARCH: A thorough review of CINAHL, MEDLINE /PubMed, and PsycINFO was conducted by the authors. DATA EVALUATION: 266 manuscripts were identified, with no time limit. The search was conducted in November 2019. In total. 19 articles were included in the review. SYNTHESIS:Throughout the disease trajectory, caregivers' psychological and emotional support needs are consistently high. whereas information needs diminish overtime. IMPLICATIONS FOR PRACTICE: Informal caregivers are imperative in supplementing the continuing care demands of people living with head and neck cancer; however, they are at risk for experiencing caregiving burden. Skill training and psychological support interventions are needed for educating and supporting caregivers.
引用
收藏
页码:11 / 29
页数:19
相关论文
共 73 条
  • [51] Moher D, 2009, PLOS MED, V6, DOI [10.1371/journal.pmed.1000097, 10.1136/bmj.i4086, 10.1016/j.ijsu.2010.02.007, 10.1186/2046-4053-4-1, 10.1136/bmj.b2700, 10.1136/bmj.b2535, 10.1016/j.ijsu.2010.07.299]
  • [52] Moss S., 2016, NEED FULFILLMENT
  • [53] National Cancer Institute, 2017, HEAD NECK CANC
  • [54] Vulnerable characteristics and interest in wellness programs among head and neck cancer caregivers
    Nightingale, Chandylen L.
    Sterba, Katherine R.
    Tooze, Janet A.
    Milliron, Brandy-Joe
    Tetrick, Lee Anne
    Paek, Min-So
    Weaver, Kathryn E.
    [J]. SUPPORTIVE CARE IN CANCER, 2016, 24 (08) : 3437 - 3445
  • [55] Experience of palliative care for patients with head and neck cancer through the eyes of next of kin: Impact of an expert center
    Offerman, Marinella P. J.
    Pruyn, Jean F. A.
    de Boer, Maarten F.
    Ledeboer, Quirine C. P.
    van Busschbach, Jan J.
    de Jong, Robert J. Baatenburg
    van der Velden, Lilly-Ann
    [J]. HEAD AND NECK-JOURNAL FOR THE SCIENCES AND SPECIALTIES OF THE HEAD AND NECK, 2014, 36 (10): : 1459 - 1466
  • [56] Study Protocol: Evaluation of a DVD intervention designed to meet the informaton needs of patients with head and neck cancer and their partner, carer and families
    Parker, Vicki
    Bennett, Leearna
    Bellamy, Douglas
    Britton, Benjamin
    Lambert, Sylvia
    [J]. BMC HEALTH SERVICES RESEARCH, 2016, 16
  • [57] Head and neck cancer and dysphagia; caring for carers
    Patterson, J. M.
    Rapley, T.
    Carding, P. N.
    Wilson, J. A.
    McColl, E.
    [J]. PSYCHO-ONCOLOGY, 2013, 22 (08) : 1815 - 1820
  • [58] CAREGIVING AND THE STRESS PROCESS - AN OVERVIEW OF CONCEPTS AND THEIR MEASURES
    PEARLIN, LI
    MULLAN, JT
    SEMPLE, SJ
    SKAFF, MM
    [J]. GERONTOLOGIST, 1990, 30 (05) : 583 - 594
  • [59] Head and neck cancer patients' perspective of carer burden
    Precious, E.
    Haran, S.
    Lowe, D.
    Rogers, S. N.
    [J]. BRITISH JOURNAL OF ORAL & MAXILLOFACIAL SURGERY, 2012, 50 (03) : 202 - 207
  • [60] VALIDATION OF A CAREGIVER STRAIN INDEX
    ROBINSON, BC
    [J]. JOURNALS OF GERONTOLOGY, 1983, 38 (03): : 344 - 348