Lived experience researchers partnering with consumers and carers to improve mental health research: Reflections from an Australian initiative

被引:49
作者
Banfield, Michelle [1 ]
Randall, Rebecca [1 ]
O'Brien, Mearon [1 ]
Hope, Sophie [1 ]
Gulliver, Amelia [1 ]
Forbes, Owen [1 ]
Morse, Alyssa R. [1 ]
Griffiths, Kathleen [1 ,2 ]
机构
[1] Australian Natl Univ, ACACIA ACT Consumer & Carer Mental Hlth Res Unit, Ctr Mental Hlth Res, Acton, ACT, Australia
[2] Australian Natl Univ, Res Sch Psychol, Acton, ACT, Australia
基金
英国医学研究理事会; 澳大利亚研究理事会;
关键词
carer involvement; consumer involvement; consumer-led research; lived experience; research partnership; PRIORITIES; PARTICIPATION;
D O I
10.1111/inm.12482
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Consumer and carer involvement in mental health research is a growing and developing field. Whilst there has been policy and in-principle support for such involvement from governments around the world, lived experience researchers conducting academic research in partnership with other consumers and carers remains uncommon. ACACIA: The Australian Capital Territory Consumer and Carer Mental Health Research Unit is based at The Australian National University and employs academic researchers with lived experience to undertake research directly relevant to the needs of mental health consumers and carers with the aim of influencing policy and practice. In this study, we share our experience of developing and conducting research within ACACIA to provide a model for meaningfully engaging mental health consumers and carers throughout the research process.
引用
收藏
页码:1219 / 1229
页数:11
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