Optimizing the Meaningful Engagement of Older Adults With Multimorbidity and Their Caregivers as Research Partners: A Qualitative Study

被引：3

作者：

Chang, Kristina ^{[1
,2
]}

Markle-Reid, Maureen ^{[1
,3
]}

Valaitis, Ruta ^{[1
,3
]}

McAiney, Carrie ^{[1
,4
]}

Carter, Nancy ^{[1
]}

机构：

[1] McMaster Univ, Sch Nursing, Hamilton, ON, Canada

[2] Univ Hlth Network, Toronto, ON, Canada

[3] McMaster Univ, Aging Community & Hlth Res Unit ACHRU, Hamilton, ON, Canada

[4] Univ Waterloo, Sch Publ Hlth & Hlth Syst, Schlegel UW Res Inst Aging, Waterloo, ON, Canada

来源：

JOURNAL OF APPLIED GERONTOLOGY | 2021年 / 40卷 / 12期

关键词：

nursing; qualitative methods; geriatrics; morbidity; chronic conditions; patient research partners; user-centered design; patient and public engagement in health care research;

D O I：

10.1177/0733464820970811

中图分类号：

R4 [临床医学]; R592 [老年病学];

学科分类号：

1002 ; 100203 ; 100602 ;

摘要：

It is widely recognized that the engagement of older adults with multimorbidity and their caregivers as partners in health care research is important and invaluable. The objective of this study was to examine how researchers can best engage and support older adults with multimorbidity and informal friend or family caregivers of older adults with multimorbidity as research partners in health care research teams. The persona-scenario method was used for participants to create fictional stories. These stories were analyzed to shed light on specific strategies that can support older adults and caregivers as partners on health care research teams, such as a patient-centered approach, identifying and addressing barriers to engagement, and clarifying roles and responsibilities on the research team. The results from this study can be used to inform research, policy, and education on supporting older adults with multimorbidity and caregivers of older adults with multimorbidity as research partners.

引用

页码：1807 / 1817

页数：11

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