Health and quality of life among the caregivers of children with disabilities: A review of literature
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作者:
Isa, Siti Nor Ismalina
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Univ Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, Malaysia
Univ Teknologi MARA, Fac Hlth Sci, Puncak Alam 42300, Selangor, MalaysiaUniv Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, Malaysia
Isa, Siti Nor Ismalina
[1
,2
]
Ishaka, Ismarulyusda
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Univ Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, MalaysiaUniv Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, Malaysia
Ishaka, Ismarulyusda
[1
]
Ab Rahman, Azriani
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Univ Sains Malaysia, Sch Med Sci, Dept Community Med, Kubang Kerian 16150, Kelantan, MalaysiaUniv Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, Malaysia
Ab Rahman, Azriani
[3
]
Saat, Nur Zakiah Mohd
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Univ Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, MalaysiaUniv Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, Malaysia
Saat, Nur Zakiah Mohd
[1
]
Din, Normah Che
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Univ Kebangsaan Malaysia, Fac Hlth Sci, Sch Healthcare Sci, Hlth Psychol Program, Kuala Lumpur 50300, MalaysiaUniv Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, Malaysia
Din, Normah Che
[4
]
Lubis, Syarif Husin
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Univ Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, MalaysiaUniv Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, Malaysia
Lubis, Syarif Husin
[1
]
Ismail, Muhammad Faiz Mohd
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Univ Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, MalaysiaUniv Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, Malaysia
Ismail, Muhammad Faiz Mohd
[1
]
机构:
[1] Univ Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, Malaysia
[2] Univ Teknologi MARA, Fac Hlth Sci, Puncak Alam 42300, Selangor, Malaysia
[3] Univ Sains Malaysia, Sch Med Sci, Dept Community Med, Kubang Kerian 16150, Kelantan, Malaysia
[4] Univ Kebangsaan Malaysia, Fac Hlth Sci, Sch Healthcare Sci, Hlth Psychol Program, Kuala Lumpur 50300, Malaysia
Psychological health;
Stress;
Quality of life;
Factors;
Caregivers;
Children with disabilities;
DEVELOPMENTAL-DISABILITIES;
PARENTING STRESS;
INDIVIDUALS;
PREDICTORS;
FAMILIES;
SUPPORT;
MOTHERS;
AUTISM;
SAMPLE;
IMPACT;
D O I:
10.1016/j.ajp.2016.07.007
中图分类号:
R749 [精神病学];
学科分类号:
100205 ;
摘要:
Families caring for children with disabilities face particular challenges and demands compared to those caring for children without disabilities. Evidence suggests that there is considerable variation in how caregivers of children with disabilities adapt to their caregiving demands and stressors. The different adaptations to the children with disabilities may cause different impacts on the health and well-being of caregivers. This paper provides a brief overview of the literature on the impact of caring for children with disabilities on the health and quality of life of caregivers and the factors related to the health outcomes and quality of life. A literature search was conducted by using various electronic databases, including PsychINFO, ScienceDirect, ProQuest, and MEDLINE using specific key terms. Thirty-one articles published in peer-review journals from the last six years (2009-2014) were reviewed. Most of the studies were quantitative studies. Factors discussed that impact on caregivers' health and quality of life include the caregivers' sociodemographic background and child's disability-related factors. Several mediators and moderators including coping strategies, social support, parental stress, self-esteem and self-efficacy are described in this paper. This review highlighted the importance of these factors to better understand the complex nature of stress processes and the caregivers' adaptations to their children's disabilities. (C) 2016 Elsevier B.V. All rights reserved.
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页码:71 / 77
页数:7
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机构:
Univ Massachusetts, Dept Sociol, Boston, MA 02125 USA
Univ Massachusetts, Ctr Social Dev & Educ, Boston, MA 02125 USAUniv Massachusetts, Dept Sociol, Boston, MA 02125 USA
机构:
Ottawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Univ Ottawa, Dept Epidemiol & Community Med, Ottawa, ON, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Brehaut, Jamie C.
Kohen, Dafna E.
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Univ Ottawa, Dept Epidemiol & Community Med, Ottawa, ON, Canada
STAT Canada, Informat & Res Div, Ottawa, ON, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Kohen, Dafna E.
Garner, Rochelle E.
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STAT Canada, Informat & Res Div, Ottawa, ON, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Garner, Rochelle E.
Miller, Anton R.
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Univ British Columbia, Dept Pediat, Vancouver, BC V6T 1W5, Canada
Ctr Community Child Hlth Res, Child & Family Res Inst, Vancouver, BC, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Miller, Anton R.
Lach, Lucyna M.
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McGill Univ, Sch Social Work, Montreal, PQ, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Lach, Lucyna M.
Klassen, Anne F.
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McMaster Univ, Dept Pediat, Hamilton, ON, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Klassen, Anne F.
Rosenbaum, Peter L.
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McMaster Child Hlth Res Inst, Hamilton, ON, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
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Hong Kong Polytech Univ, Fac Hlth & Social Sci, Sch Nursing, Kowloon, Hong Kong, Peoples R ChinaHong Kong Polytech Univ, Fac Hlth & Social Sci, Sch Nursing, Kowloon, Hong Kong, Peoples R China
Chien, Wai-Tong
Lee, Isabella Y. M.
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Tuen Mun Hosp, Hosp Author, Electrodiagnost Unit, Hong Kong, Hong Kong, Peoples R ChinaHong Kong Polytech Univ, Fac Hlth & Social Sci, Sch Nursing, Kowloon, Hong Kong, Peoples R China
机构:
Univ Massachusetts, Dept Sociol, Boston, MA 02125 USA
Univ Massachusetts, Ctr Social Dev & Educ, Boston, MA 02125 USAUniv Massachusetts, Dept Sociol, Boston, MA 02125 USA
机构:
Ottawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Univ Ottawa, Dept Epidemiol & Community Med, Ottawa, ON, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Brehaut, Jamie C.
Kohen, Dafna E.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Ottawa, Dept Epidemiol & Community Med, Ottawa, ON, Canada
STAT Canada, Informat & Res Div, Ottawa, ON, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Kohen, Dafna E.
Garner, Rochelle E.
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h-index: 0
机构:
STAT Canada, Informat & Res Div, Ottawa, ON, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Garner, Rochelle E.
Miller, Anton R.
论文数: 0引用数: 0
h-index: 0
机构:
Univ British Columbia, Dept Pediat, Vancouver, BC V6T 1W5, Canada
Ctr Community Child Hlth Res, Child & Family Res Inst, Vancouver, BC, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Miller, Anton R.
Lach, Lucyna M.
论文数: 0引用数: 0
h-index: 0
机构:
McGill Univ, Sch Social Work, Montreal, PQ, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Lach, Lucyna M.
Klassen, Anne F.
论文数: 0引用数: 0
h-index: 0
机构:
McMaster Univ, Dept Pediat, Hamilton, ON, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
Klassen, Anne F.
Rosenbaum, Peter L.
论文数: 0引用数: 0
h-index: 0
机构:
McMaster Child Hlth Res Inst, Hamilton, ON, CanadaOttawa Hosp, Ottawa Hlth Res Inst, Clin Epidemiol Program, Ottawa, ON K1Y 4E9, Canada
机构:
Hong Kong Polytech Univ, Fac Hlth & Social Sci, Sch Nursing, Kowloon, Hong Kong, Peoples R ChinaHong Kong Polytech Univ, Fac Hlth & Social Sci, Sch Nursing, Kowloon, Hong Kong, Peoples R China
Chien, Wai-Tong
Lee, Isabella Y. M.
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h-index: 0
机构:
Tuen Mun Hosp, Hosp Author, Electrodiagnost Unit, Hong Kong, Hong Kong, Peoples R ChinaHong Kong Polytech Univ, Fac Hlth & Social Sci, Sch Nursing, Kowloon, Hong Kong, Peoples R China