Health and quality of life among the caregivers of children with disabilities: A review of literature

被引:64
作者
Isa, Siti Nor Ismalina [1 ,2 ]
Ishaka, Ismarulyusda [1 ]
Ab Rahman, Azriani [3 ]
Saat, Nur Zakiah Mohd [1 ]
Din, Normah Che [4 ]
Lubis, Syarif Husin [1 ]
Ismail, Muhammad Faiz Mohd [1 ]
机构
[1] Univ Kebangsaan Malaysia, Fac Hlth Sci, Sch Diagnost & Appl Hlth Sci, Kuala Lumpur 50300, Malaysia
[2] Univ Teknologi MARA, Fac Hlth Sci, Puncak Alam 42300, Selangor, Malaysia
[3] Univ Sains Malaysia, Sch Med Sci, Dept Community Med, Kubang Kerian 16150, Kelantan, Malaysia
[4] Univ Kebangsaan Malaysia, Fac Hlth Sci, Sch Healthcare Sci, Hlth Psychol Program, Kuala Lumpur 50300, Malaysia
关键词
Psychological health; Stress; Quality of life; Factors; Caregivers; Children with disabilities; DEVELOPMENTAL-DISABILITIES; PARENTING STRESS; INDIVIDUALS; PREDICTORS; FAMILIES; SUPPORT; MOTHERS; AUTISM; SAMPLE; IMPACT;
D O I
10.1016/j.ajp.2016.07.007
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
Families caring for children with disabilities face particular challenges and demands compared to those caring for children without disabilities. Evidence suggests that there is considerable variation in how caregivers of children with disabilities adapt to their caregiving demands and stressors. The different adaptations to the children with disabilities may cause different impacts on the health and well-being of caregivers. This paper provides a brief overview of the literature on the impact of caring for children with disabilities on the health and quality of life of caregivers and the factors related to the health outcomes and quality of life. A literature search was conducted by using various electronic databases, including PsychINFO, ScienceDirect, ProQuest, and MEDLINE using specific key terms. Thirty-one articles published in peer-review journals from the last six years (2009-2014) were reviewed. Most of the studies were quantitative studies. Factors discussed that impact on caregivers' health and quality of life include the caregivers' sociodemographic background and child's disability-related factors. Several mediators and moderators including coping strategies, social support, parental stress, self-esteem and self-efficacy are described in this paper. This review highlighted the importance of these factors to better understand the complex nature of stress processes and the caregivers' adaptations to their children's disabilities. (C) 2016 Elsevier B.V. All rights reserved.
引用
收藏
页码:71 / 77
页数:7
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