Qualitative Study: Exploring the Experiences of Family Caregivers within an Inpatient Neurology and Neurosurgery Hospital Setting

The aim of this study was to further understanding of what it means for family caregivers to be included in their relatives' care and identify what type of care they are providing. This study used a qualitative research design to recruit 12 participants, who were family caregivers, from the adult neurology and neurosurgery units at a hospital located in Toronto, Ontario, Canada. The data were collected using semistructured interviews, which were conducted in person and ranged between 30 and 60 minutes in length. Analysis of the data was conducted using phenomenological guidelines and principles. Upon review, the results indicated that the participants shared common experiences that were grouped into three main themes: (1) unfamiliarity with the hospital environment and procedures, (2) identifying the hidden realities of families and caregivers, and (3) strengthening collaborative dialogues and opportunities. Overall, this study exemplified that the need to continue to recognize family caregivers' experiences and their involvement is paramount in being able to understand how and in what way patient care can be better optimized collaboratively, during treatment delivery and recovery stages.