Patient Involvement in Outcome Measures for Psoriatic Arthritis

被引：34

作者：

Tillett, William ^{[1
]}

Adebajo, Ade ^{[2
]}

Brooke, Mel

Campbell, Willemina

Coates, Laura C. ^{[3
,4
]}

FitzGerald, Oliver ^{[5
,6
]}

Gossec, Laure ^{[7
]}

Helliwell, Philip ^{[8
]}

Hewlett, Sarah ^{[9
]}

James, Jana

Minnock, Patricia ^{[10
]}

Reast, Aisling ^{[11
]}

O'Sullivan, Dennis ^{[5
]}

de Wit, Maarten ^{[12
]}

McHugh, Neil ^{[1
,13
]}

机构：

[1] Royal Natl Hosp Rheumat Dis, Bath BA1 1RL, Avon, England

[2] Univ Sheffield, Fac Med Dent & Hlth, Sheffield S10 2RX, S Yorkshire, England

[3] Univ Leeds, Leeds Inst Rheumat & Musculoskeletal Med, Leeds, W Yorkshire, England

[4] Leeds Teaching Hosp NHS Trust, Leeds Musculoskeletal Biomed Res Unit, Leeds, W Yorkshire, England

[5] St Vincents Univ Hosp, Dept Rheumatol, Dublin 4, Ireland

[6] Univ Coll Dublin, Conway Inst Biomol Res, Dublin 2, Ireland

[7] Univ Paris 06, Dept Rheumatol, Pitie Salpetriere Hosp, AP HP,GRC UPMC EEMOIS 08, Paris, France

[8] Univ Leeds, Chapel Allerton Hosp, Leeds Inst Rheumat & Musculoskeletal Med, Leeds LS7 4SA, W Yorkshire, England

[9] Univ W England, Dept Nursing & Midwifery, Bristol BS16 1QY, Avon, England

[10] Univ Coll Dublin Rheumatol Rehabil, Our Ladys Hosp, Dublin, Ireland

[11] Pharmaceut Soc Ireland, Dublin, Ireland

[12] Vrije Univ Amsterdam Med Ctr, Dept Med Humanities, NL-1081 BT Amsterdam, Netherlands

[13] Univ Bath, Bath BA2 7AY, Avon, England

来源：

CURRENT RHEUMATOLOGY REPORTS | 2014年 / 16卷 / 05期

关键词：

Psoriatic arthritis; Outcomemeasures; Assessment; Disease activity; Patient-reported outcomes; Patient involvement; PIOMPSA; OMERACT; QUALITY-OF-LIFE; HEALTH-ASSESSMENT QUESTIONNAIRE; COMPOSITE DISEASE-ACTIVITY; IMPACT MEASUREMENT SCALES; SPONDYLOARTHRITIS RESEARCH CONSORTIUM; INTEROBSERVER RELIABILITY EXERCISE; INFORMING RESPONSE CRITERIA; JOINT ACTIVITY INDEX; SEVERITY INDEX; RHEUMATOID-ARTHRITIS;

D O I：

10.1007/s11926-014-0418-7

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Psoriatic arthritis (PsA) is a heterogeneous inflammatory arthritis with a varied clinical phenotype. There has been considerable international collaboration over recent years to develop and prioritise appropriate disease domains and outcome measures to capture all aspects of this complex disease. It has been recognised that patient-reported measures and physician assessments are complementary and, when used together, allow an improved reflection of disease burden. Taking this concept one step further, the experience in rheumatoid arthritis has demonstrated benefits of incorporating the patient perspective in the development of outcome measures. We report a systematic review demonstrating (1) that there has been little incorporation of the patient perspective in the development of outcome measures and domains in PsA, (2) the proceedings from the preliminary patient involvement in outcome measures for PsA (PIOMPSA) meetings, and (3) a proposed roadmap for improving patient involvement.

引用

页数：10

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