The Congenital Diaphragmatic Hernia Study Group Registry

被引：20

作者：

Morini, Francesco ^{[1
]}

Lally, Pamela A. ^{[2
,3
]}

Lally, Kevin P. ^{[2
,3
]}

Bagolan, Pietro ^{[1
]}

机构：

[1] Bambino Gesu Pediat Hosp, Dept Med & Surg Neonatol, Neonatal Surg Unit, IRCCS, I-00165 Rome, Italy

[2] Univ Texas Houston, Med Sch Houston, Dept Pediat Surg, Houston, TX USA

[3] Childrens Mem Hermann Hosp, Houston, TX USA

来源：

EUROPEAN JOURNAL OF PEDIATRIC SURGERY | 2015年 / 25卷 / 06期

关键词：

congenital diaphragmatic hernia; management; registry; stratification; treatment; EXTRACORPOREAL MEMBRANE-OXYGENATION; SURVIVAL; INFANTS; REPAIR; SURFACTANT; MORTALITY; PREDICTOR; OUTCOMES; THERAPY; DEFECT;

D O I：

10.1055/s-0035-1569151

中图分类号：

R72 [儿科学];

学科分类号：

100202 ;

摘要：

Congenital diaphragmatic hernia (CDH) is a rare anomaly with an incidence between 1/2,500 and 1/3,000 live births. The rarity of the disease makes it difficult to design powerful studies leading to accurate and meaningful evidence. For rare diseases, the development of multicenter international registries may help in collecting data and give an overall picture of the disease. In this review, we will describe the development of the CDH study group, we will describe its work methodology, and the results obtained since its birth in 1995.

引用

页码：488 / 496

页数：9

共 35 条

[1] Congenital Diaphragmatic Hernia Associated with Esophageal Atresia: Incidence, Outcomes, and Determinants of Mortality [J].

Ben-Ishay, Offir ;

Johnson, Victor M. ;

Wilson, Jay M. ;

Buchmiller, Terry L. .

JOURNAL OF THE AMERICAN COLLEGE OF SURGEONS, 2013, 216 (01) :90-+

[2] A Clinical Prediction Rule for the Severity of Congenital Diaphragmatic Hernias in Newborns [J].

Brindle, Mary Elizabeth ;

Cook, Earl Francis ;

Tibboel, Dick ;

Lally, Pamela A. ;

Lally, Kevin P. .

PEDIATRICS, 2014, 134 (02) :E413-E419

[3] Congenital diaphragmatic hernia requiring extracorporeal membrane oxygenation: does timing of repair matter? [J].

Bryner, Benjamin S. ;

West, Brady T. ;

Hirschl, Ronald B. ;

Drongowski, Robert A. ;

Lally, Kevin P. ;

Lally, Pamela ;

Mychaliska, George B. .

JOURNAL OF PEDIATRIC SURGERY, 2009, 44 (06) :1165-1172

[4] Pulmonary support on Day 30 as a predictor of morbidity and mortality in congenital diaphragmatic hernia [J].

Cauley, Ryan P. ;

Stoffan, Alexander ;

Potanos, Kristina ;

Fullington, Nora ;

Graham, Dionne A. ;

Finkelstein, Jonathan A. ;

Kim, Heung Bae ;

Wilson, Jay M. .

JOURNAL OF PEDIATRIC SURGERY, 2013, 48 (06) :1183-1189

[5] Current surgical management of congenital diaphragmatic hernia: A report from the congenital diaphragmatic hernia study group [J].

Clark, RH ;

Hardin, WD ;

Hirschl, RB ;

Jaksic, T ;

Lally, KP ;

Langham, MR ;

Wilson, JM .

JOURNAL OF PEDIATRIC SURGERY, 1998, 33 (07) :1004-1007

[6] Surfactant replacement therapy on ECMO does not improve outcome in neonates with congenital diaphragmatic hernia [J].

Colby, CE .

JOURNAL OF PEDIATRIC SURGERY, 2004, 39 (11) :1632-1637

[7] Early repair of congenital diaphragmatic hernia on extracorporeal membrane oxygenation [J].

Dassinger, Melvin S. ;

Copeland, Daniel R. ;

Gossett, Jeff ;

Little, Danny C. ;

Jackson, Richard J. ;

Smith, Samuel D. .

JOURNAL OF PEDIATRIC SURGERY, 2010, 45 (04) :693-697

[8] Prenatal diagnosis of congenital diaphragmatic hernia: how should the babies be delivered? [J].

Frenckner, Bjoern P. ;

Lally, Pam A. ;

Hintz, Susan R. ;

Lally, Kevin P. .

JOURNAL OF PEDIATRIC SURGERY, 2007, 42 (09) :1533-1538

[9] Cardiac anomalies in patients with congenital diaphragmatic hernia and their prognosis: a report from the Congenital Diaphragmatic Hernia Study Group [J].

Graziano, JN .

JOURNAL OF PEDIATRIC SURGERY, 2005, 40 (06) :1045-1050

[10] A risk-stratified analysis of delayed congenital diaphragmatic hernia repair: Does timing of operation matter? [J].

Hollinger, Laura E. ;

Lally, Pamela A. ;

Tsao, KuoJen ;

Wray, Curtis J. ;

Lally, Kevin P. .

SURGERY, 2014, 156 (02) :475-482

← 1 2 3 4 →