Caring for a Child with Autism Spectrum Disorder and Parents' Quality of Life: Application of the CarerQol

被引：128

作者：

Hoefman, Renske ^{[1
]}

Payakachat, Nalin ^{[2
]}

van Exel, Job ^{[1
]}

Kuhlthau, Karen ^{[3
,4
]}

Kovacs, Erica ^{[5
]}

Pyne, Jeffrey ^{[6
]}

Tilford, J. Mick ^{[7
]}

机构：

[1] Erasmus Univ, Inst Hlth Policy & Management, NL-3000 DR Rotterdam, Netherlands

[2] Univ Arkansas Med Sci, Div Pharmaceut Evaluat & Policy, Little Rock, AR 72205 USA

[3] Harvard Univ, Sch Med, Dept Pediat, Boston, MA 02115 USA

[4] Massachusetts Gen Hosp, Ctr Child & Adolescent Hlth Policy, Boston, MA 02114 USA

[5] Columbia Univ, Dept Psychiat, Div Child & Adolescent Psychiat, Med Ctr, New York, NY USA

[6] Cent Arkansas Vet Healthcare Syst, Ctr Mental Hlth Outcomes Res, Little Rock, AR USA

[7] Univ Arkansas Med Sci, Dept Hlth Policy & Management, Little Rock, AR 72205 USA

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2014年 / 44卷 / 08期

关键词：

Family caregiving; Subjective burden; Autism spectrum disorders (ASDs); Quality of life; CarerQol; Construct validation; INFORMAL CARE; DEPRESSED MOOD; HEALTH-STATUS; IMPACT; BURDEN; CAREGIVERS; STRESS; FAMILY; MOTHERS; ASD;

D O I：

10.1007/s10803-014-2066-1

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs.

引用

页码：1933 / 1945

页数：13

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