Evaluation of a Family Systems Intervention for Managing Pediatric Chronic Illness: Mastering Each New Direction (MEND)

被引:20
作者
Distelberg, Brian [1 ]
Williams-Reade, Jackie [1 ]
Tapanes, Daniel [1 ]
Montgomery, Susanne [2 ]
Pandit, Mayuri [3 ]
机构
[1] Loma Linda Univ, Dept Counseling & Family Sci, Loma Linda, CA 92350 USA
[2] Loma Linda Univ, Behav Hlth Inst, Loma Linda, CA 92350 USA
[3] Loma Linda Univ, Behav Med Ctr, Loma Linda, CA 92350 USA
关键词
Chronic illness; Pediatric; Diabetes; Kidney Disease; Rheumatology; Psychosocial Intervention; RANDOMIZED CONTROLLED-TRIAL; QUALITY-OF-LIFE; MULTISYSTEMIC THERAPY; ADOLESCENTS; TYPE-1; ADHERENCE; CHILDREN; SUPPORT; MODEL; EFFICACY;
D O I
10.1111/famp.12066
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
Family systems play a crucial, albeit complex, role in pediatric chronic illness. Unfortunately, very few psychosocial interventions are available to help these stressed families navigate the developmental steps of chronic illness. A new intervention (MEND) addresses the needs of these families and applies to a broad range of chronic illnesses. This article presents this family systems intervention as well as includes preliminary program evaluation data on 22 families that graduated from the program. Results show consistently strong effects across an array of psychosocial measures. Conclusions from this preliminary study suggest that families entering MEND present with high levels of stress due to the child's chronic illness, but after MEND, the level of stress and other functioning measures are comparable to those seen in healthy families, suggesting that the program offers a significant benefit to families with pediatric chronic illness.
引用
收藏
页码:194 / 213
页数:20
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