Unmet supportive care needs and characteristics of family caregivers of patients with oral cancer after surgery

被引:68
作者
Chen, Shu-Ching [1 ,6 ]
Lai, Yeur-Hur [2 ]
Liao, Chun-Ta [3 ,4 ,6 ]
Huang, Bing-Shen [4 ,5 ,6 ]
Lin, Chien-Yu [4 ,5 ,6 ]
Fan, Kang-Hsing [4 ,5 ,6 ]
Chang, Joseph Tung-Chien [4 ,5 ,6 ]
机构
[1] Chang Gung Univ Sci & Technol, Dept Nursing, Taoyuan 333, Taiwan
[2] Natl Taiwan Univ, Coll Med, Sch Nursing, Taipei 10764, Taiwan
[3] Chang Gung Mem Hosp LinKou, Chang Gung Med Fdn, Dept Otorhinolaryngol Head & Neck Surg, Taoyuan, Taiwan
[4] Chang Gung Univ, Coll Med, Taoyuan, Taiwan
[5] Chang Gung Mem Hosp LinKou, Chang Gung Med Fdn, Dept Radiat Oncol, Taoyuan, Taiwan
[6] Chang Gung Mem Hosp LinKou, Chang Gung Med Fdn, Head & Neck Oncol Grp, Taoyuan, Taiwan
关键词
cancer; oncology; oral cancer; family caregiver; unmet supportive care needs; QUALITY-OF-LIFE; PERFORMANCE STATUS; LUNG-CANCER; NECK-CANCER; DEPRESSION; ANXIETY; EXPERIENCES; PREVALENCE; TRANSITION; KARNOFSKY;
D O I
10.1002/pon.3458
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
ObjectiveThe aim of this study was to identify factors associated with unmet supportive care needs in family caregivers of patients with oral cancer after surgery. MethodsIn a cross-sectional study, we recruited patient-family caregiver dyads from the otolaryngology head and neck surgery wards of a medical center in northern Taiwan. Patients were assessed using a set of structured questionnaires to measure symptom distress, sleep quality, and depression. Social support and supportive care needs of family caregivers were measured. ResultsOf the 102 dyads surveyed, needs for supportive care in information domain and healthcare professional/healthcare services domain were highest. Patients with more severe symptoms and family caregivers who received less social support from family were associated with greater overall unmet supportive care needs. ConclusionsFamily caregivers report the need for more information and healthcare services after a family member has had oral surgery. Caregiving training programs should be developed for caregivers on the basis of meeting reported needs. Copyright (c) 2014 John Wiley & Sons, Ltd.
引用
收藏
页码:569 / 577
页数:9
相关论文
共 52 条
[1]  
[Anonymous], NCI dictionary of cancer terms
[2]   A survey of the supportive care needs of informal caregivers of adult bone marrow transplant patients [J].
Armoogum, J. ;
Richardson, A. ;
Armes, J. .
SUPPORTIVE CARE IN CANCER, 2013, 21 (04) :977-986
[3]   Quality of life outcome measures using UW-QOL questionnaire v4 in early oral cancer/squamous cell cancer resections of the tongue and floor of mouth with reconstruction solely using local methods [J].
Boyapati, Raghuram P. ;
Shah, Ketan C. ;
Flood, Valerie ;
Stassen, Leo F. A. .
BRITISH JOURNAL OF ORAL & MAXILLOFACIAL SURGERY, 2013, 51 (06) :502-507
[4]   Karnofsky and ECOG performance status scoring in lung cancer: A prospective, longitudinal study of 536 patients from a single institution [J].
Buccheri, G ;
Ferrigno, D ;
Tamburini, M .
EUROPEAN JOURNAL OF CANCER, 1996, 32A (07) :1135-1141
[5]   THE PITTSBURGH SLEEP QUALITY INDEX - A NEW INSTRUMENT FOR PSYCHIATRIC PRACTICE AND RESEARCH [J].
BUYSSE, DJ ;
REYNOLDS, CF ;
MONK, TH ;
BERMAN, SR ;
KUPFER, DJ .
PSYCHIATRY RESEARCH, 1989, 28 (02) :193-213
[6]   The experiences of Taiwanese women caring for parents-in-law [J].
Chao, SY ;
Roth, P .
JOURNAL OF ADVANCED NURSING, 2000, 31 (03) :631-638
[7]   Caring For Overseas Liver Transplant Recipients: Taiwan Primary Family Caregivers' Experiences in Mainland China [J].
Chen, H. M. ;
Shih, F. Jong ;
Chang, C. L. ;
Lai, I. H. ;
Shih, F. J. ;
Hu, R. H. .
TRANSPLANTATION PROCEEDINGS, 2010, 42 (10) :3921-3923
[8]   Psychometric testing of the Impact of Event Scale-Chinese Version (IES-C) in oral cancer patients in Taiwan [J].
Chen, SC ;
Lai, YH ;
Liao, CT ;
Lin, CC .
SUPPORTIVE CARE IN CANCER, 2005, 13 (07) :485-492
[9]   Supportive care needs in newly diagnosed oral cavity cancer patients receiving radiation therapy [J].
Chen, Shu-Ching ;
Lai, Yeur-Hur ;
Liao, Chun-Ta ;
Chang, Joseph Tung-Chien ;
Lin, Chien-Yu ;
Fan, Kang-Hsing ;
Huang, Bing-Shen .
PSYCHO-ONCOLOGY, 2013, 22 (06) :1220-1228
[10]   Prevalence and Correlates of Supportive Care Needs in Oral Cancer Patients With and Without Anxiety During the Diagnostic Period [J].
Chen, Shu-Ching ;
Yu, Wen-Pin ;
Chu, Tsung-Lan ;
Hung, Hsiu-Chin ;
Tsai, Mei-Chu ;
Liao, Chun-Ta .
CANCER NURSING, 2010, 33 (04) :280-289