Parents' future visions for their autistic transition-age youth: Hopes and expectations

被引:25
|
作者
Chen, Jennifer [1 ]
Cohn, Ellen S. [1 ]
Orsmond, Gael I. [1 ]
机构
[1] Boston Univ, Dept Occupat Therapy, 635 Commonwealth Ave, Boston, MA 02215 USA
关键词
adolescent; autism; hope; parent; transition; YOUNG-ADULTS; SPECTRUM DISORDERS; SOCIAL-PARTICIPATION; OUTCOMES; PERSPECTIVES; ADOLESCENTS; DISABILITIES; INDIVIDUALS; EMPLOYMENT; STUDENTS;
D O I
10.1177/1362361318812141
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Researchers have documented that young adults with autism spectrum disorder have poor outcomes in employment, post-secondary education, social participation, independent living, and community participation. There is a need to further explore contributing factors to such outcomes to better support successful transitions to adulthood. Parents play a critical role in transition planning, and parental expectations appear to impact young adult outcomes for autistic individuals. The aim of this study was to explore how parents express their future visions (i.e. hopes and expectations) for their autistic transition-age youth. Data were collected through focus groups and individual interviews with 18 parents. Parents' hopes and expectations focused on eight primary domains. In addition, parents often qualified or tempered their stated hope with expressions of fears, uncertainty, realistic expectations, and the perceived lack of guidance. We discuss our conceptualization of the relations among these themes and implications for service providers and research.
引用
收藏
页码:1363 / 1372
页数:10
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