Parents' future visions for their autistic transition-age youth: Hopes and expectations

被引:25
|
作者
Chen, Jennifer [1 ]
Cohn, Ellen S. [1 ]
Orsmond, Gael I. [1 ]
机构
[1] Boston Univ, Dept Occupat Therapy, 635 Commonwealth Ave, Boston, MA 02215 USA
关键词
adolescent; autism; hope; parent; transition; YOUNG-ADULTS; SPECTRUM DISORDERS; SOCIAL-PARTICIPATION; OUTCOMES; PERSPECTIVES; ADOLESCENTS; DISABILITIES; INDIVIDUALS; EMPLOYMENT; STUDENTS;
D O I
10.1177/1362361318812141
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Researchers have documented that young adults with autism spectrum disorder have poor outcomes in employment, post-secondary education, social participation, independent living, and community participation. There is a need to further explore contributing factors to such outcomes to better support successful transitions to adulthood. Parents play a critical role in transition planning, and parental expectations appear to impact young adult outcomes for autistic individuals. The aim of this study was to explore how parents express their future visions (i.e. hopes and expectations) for their autistic transition-age youth. Data were collected through focus groups and individual interviews with 18 parents. Parents' hopes and expectations focused on eight primary domains. In addition, parents often qualified or tempered their stated hope with expressions of fears, uncertainty, realistic expectations, and the perceived lack of guidance. We discuss our conceptualization of the relations among these themes and implications for service providers and research.
引用
收藏
页码:1363 / 1372
页数:10
相关论文
共 50 条
  • [1] Transition preparation activities and expectations for the transition to adulthood among parents of autistic youth
    Kirby, Anne, V
    Feldman, Kristina J. Cottle
    Hoffman, Jenna M.
    Diener, Marissa L.
    Himle, Michael B.
    RESEARCH IN AUTISM SPECTRUM DISORDERS, 2020, 78
  • [2] Environmental interventions supporting autistic transition-age youth employability: A scoping review
    Clouder, Lynn
    Karakus, Mehmet
    Polat, Filiz
    RESEARCH IN AUTISM SPECTRUM DISORDERS, 2023, 109
  • [3] Autistic Adolescents' and Their Parents' Visions for the Future: How Aligned Are They?
    Kirby, Anne V.
    Diener, Marissa L.
    Dean, Evan E.
    Darlington, Amber Nowell
    Myers, Alyssa
    Henderson, Jarrett
    AUTISM IN ADULTHOOD, 2022, 4 (01): : 32 - 41
  • [4] Differential vocational rehabilitation service patterns and outcomes for transition-age youth with autism
    Kaya, Cahit
    Hanley-Maxwell, Cheryl
    Chan, Fong
    Tansey, Timothy
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2018, 31 (05) : 862 - 872
  • [5] Mentoring Transition-Age Youth With Blindness
    Bell, Edward C.
    JOURNAL OF SPECIAL EDUCATION, 2012, 46 (03) : 170 - 179
  • [6] A Combined Interventional Approach to Train Interview Skills in Autistic Transition-Age Youth
    Genova, Helen M.
    Elsayed, Heba E.
    Haas, Mikayla
    Parrott, Devan
    Krch, Denise
    Dacanay, Michael
    Smith, Matthew J.
    JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2024,
  • [7] Psychometric properties of the mock interview rating scale for autistic transition-age youth
    Smith, Matthew J.
    Sherwood, Kari L.
    Genova, Helen M.
    Ross, Brittany
    Dawalt, Leann Smith
    Bishop, Lauren
    Telfer, David
    Brown, Cheryl
    Sanchez, Barbara
    Kallen, Michael A.
    FRONTIERS IN PSYCHIATRY, 2023, 14
  • [8] An evaluation of intervention research for transition-age autistic youth
    Bottema-Beutel, Kristen
    LaPoint, Shannon Crowley
    Kim, So Yoon
    Mohiuddin, Sarah
    Yu, Qun
    McKinnon, Rachael
    AUTISM, 2023, 27 (04) : 890 - 904
  • [9] Validating a Model of Motivational Factors Influencing Involvement for Parents of Transition-Age Youth With Disabilities
    Hirano, Kara A.
    Shanley, Lina
    Garbacz, S. Andrew
    Rowe, Dawn A.
    Lindstrom, Lauren
    Leve, Leslie D.
    REMEDIAL AND SPECIAL EDUCATION, 2018, 39 (01) : 15 - 26
  • [10] Parent Perspectives: Understanding the Postschool Concerns of Parents of Transition-Age Youth With Disabilities
    Sanderson, Kelli A.
    Bumble, Jennifer L.
    CAREER DEVELOPMENT AND TRANSITION FOR EXCEPTIONAL INDIVIDUALS, 2023, 46 (03) : 120 - 132