"I Couldn't See a Downside": Decision-Making About Gender-Affirming Hormone Therapy

被引:21
作者
Daley, Thomas [1 ]
Grossoehme, Daniel [1 ,2 ]
McGuire, Jenifer K. [3 ]
Corathers, Sarah [1 ,4 ]
Conard, Lee Ann [1 ,5 ]
Lipstein, Ellen A. [1 ,6 ]
机构
[1] Univ Cincinnati, Coll Med, Cincinnati, OH USA
[2] Cincinnati Childrens Hosp Med Ctr, Dept Pediat, Div Pulm Med, Cincinnati, OH 45229 USA
[3] Univ Minnesota, Dept Family Social Sci, Minneapolis, MN USA
[4] Cincinnati Childrens Hosp Med Ctr, Dept Pediat, Div Endocrinol, Cincinnati, OH 45229 USA
[5] Cincinnati Childrens Hosp Med Ctr, Dept Pediat, Div Adolescent & Transit Med, Cincinnati, OH 45229 USA
[6] Cincinnati Childrens Hosp Med Ctr, Dept Pediat, James M Anderson Ctr Hlth Syst Excellence, Cincinnati, OH 45229 USA
关键词
CHRONIC DISEASE TREATMENT; HEALTH-CARE; TRANSGENDER; YOUTH; PARENTS; ADOLESCENTS; REGRET;
D O I
10.1016/j.jadohealth.2019.02.018
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Purpose: The aim of the article was to understand adolescents' and parents' decision-making process related to gender-affirming hormone therapy (GAHT). Methods: We conducted qualitative semistructured interviews with transgender adolescents who began testosterone for GAHT in the prior year and the parents of such adolescents. Questions focused on decision-making roles, steps in the decision process, and factors considered in the decision. Participants used pie charts to describe the division of responsibility for the decision. All interviews were coded by at least two members of the research team with disagreements resolved through discussion. Thematic analysis was used to analyze the data. Results: Seventeen adolescents and 13 parents were interviewed (12 dyads). The process of deciding about GAHT involves a series of small conversations, typically with the adolescent advocating to start treatment and the parent feeling hesitant. In most cases, after seeking information from the Internet, healthcare providers and personal contacts move toward acceptance and agree to start treatment. Although adolescents have some short-term concerns, such as about needles, parents' concerns relate more to long-term risks. Ultimately, for both parents and adolescents, the benefits of treatment outweigh any concerns, and they are in agreement about the goals of personal confidence, comfort in one's body and happiness. Conclusions: To the extent that the decision about GAHT is a medical decision, the decision process is similar to others. However, decisions about GAHT are much more about gender identity than medical risks, suggesting that interventions based in a medical framework may not aid in supporting decision-making. (C) 2019 Society for Adolescent Health and Medicine. All rights reserved.
引用
收藏
页码:274 / 279
页数:6
相关论文
共 33 条
[1]  
Archer SL, 1993, DISCUSSIONS EGO IDEN
[2]   Navigating the Unknown: Shared Decision-Making in the Face of Uncertainty [J].
Berger, Zackary .
JOURNAL OF GENERAL INTERNAL MEDICINE, 2015, 30 (05) :675-678
[3]   Fertility Preservation for Transgender Adolescents [J].
Chen, Diane ;
Simons, Lisa ;
Johnson, Emilie K. ;
Lockart, Barbara A. ;
Finlayson, Courtney .
JOURNAL OF ADOLESCENT HEALTH, 2017, 61 (01) :120-123
[4]   The treatment of adolescent transsexuals: Changing insights [J].
Cohen-Kettenis, Peggy T. ;
Delemarre-van de Waal, Henriette A. ;
Gooren, Louis J. G. .
JOURNAL OF SEXUAL MEDICINE, 2008, 5 (08) :1892-1897
[5]   Adolescents with gender dysphoria [J].
Cohen-Kettenis, Peggy T. ;
Klink, Daniel .
BEST PRACTICE & RESEARCH CLINICAL ENDOCRINOLOGY & METABOLISM, 2015, 29 (03) :485-495
[6]   Standards of Care for the Health of Transsexual, Transgender, and Gender-Nonconforming People, Version 7 [J].
Coleman, E. ;
Bockting, W. ;
Botzer, M. ;
Cohen-Kettenis, P. ;
DeCuypere, G. ;
Feldman, J. ;
Fraser, L. ;
Green, J. ;
Knudson, G. ;
Meyer, W. ;
Monstrey, S. ;
Adler, R. ;
Brown, G. ;
Devor, A. ;
Ehrbar, R. ;
Ettner, R. ;
Eyler, E. ;
Garofalo, R. ;
Karasic, D. ;
Lev, A. ;
Mayer, G. ;
Meyer-Bahlburg, H. ;
Hall, B. ;
Pfaefflin, F. ;
Rachlin, K. ;
Robinson, B. ;
Schechter, L. ;
Tangpricha, V. ;
van Trotsenburg, M. ;
Vitale, A. ;
Winter, S. ;
Whittle, S. ;
Wylie, K. ;
Zucker, K. .
INTERNATIONAL JOURNAL OF TRANSGENDERISM, 2012, 13 (04) :165-232
[7]   The Mental Health of Transgender Youth: Advances in Understanding [J].
Connolly, Maureen D. ;
Zervos, Marcus J. ;
Barone, Charles J., II ;
Johnson, Christine C. ;
Joseph, Christine L. M. .
JOURNAL OF ADOLESCENT HEALTH, 2016, 59 (05) :489-495
[8]  
Diamond LM, 2011, HANDBOOK OF IDENTITY THEORY AND RESEARCH, VOLS 1 AND 2, P629, DOI 10.1007/978-1-4419-7988-9_26
[9]   What Is Shared in Shared Decision Making? Complex Decisions When the Evidence Is Unclear [J].
Epstein, Ronald M. ;
Gramling, Robert E. .
MEDICAL CARE RESEARCH AND REVIEW, 2013, 70 :94S-112S
[10]   Needs and concerns of transgender individuals regarding interdisciplinary transgender healthcare: A non-clinical online survey [J].
Eyssel, Jana ;
Koehler, Andreas ;
Dekker, Arne ;
Sehner, Susanne ;
Nieder, Timo O. .
PLOS ONE, 2017, 12 (08)