To be understood: Transitioning to adult life for people with Autism Spectrum Disorder

被引:34
作者
Thompson, Craig [1 ,2 ]
Bolte, Sven [1 ,2 ,3 ,4 ,5 ]
Falkmer, Torbjorn [1 ,2 ]
Girdler, Sonya [1 ,2 ]
机构
[1] Autism CRC, Cooperat Res Ctr Living Autism, Brisbane, Qld, Australia
[2] Curtin Univ, Sch Occupat Therapy Social Work & Speech Pathol, Perth, WA, Australia
[3] Karolinska Inst, Child & Adolescent Psychiat Res Ctr, Ctr Neurodev Disorders,Pediat Neuropsychiat Unit, Dept Womens & Childrens Hlth,Karolinska Inst KIND, Stockholm, Sweden
[4] Stockholm Cty Council, Ctr Psychiat Res, Child & Adolescent Psychiat, Stockholm, Sweden
[5] Karolinska Inst, Karolinska Inst KIND, Ctr Neurodev Disorders, Stockholm, Sweden
来源
PLOS ONE | 2018年 / 13卷 / 03期
关键词
SOCIAL RESPONSIVENESS SCALE; YOUNG-ADULTS; EDUCATIONAL ACTIVITIES; QUALITATIVE RESEARCH; ASPERGER SYNDROME; FOLLOW-UP; EMPLOYMENT; INDIVIDUALS; CHILDREN; OUTCOMES;
D O I
10.1371/journal.pone.0194758
中图分类号
O [数理科学和化学]; P [天文学、地球科学]; Q [生物科学]; N [自然科学总论];
学科分类号
07 ; 0710 ; 09 ;
摘要
Introduction The purpose of this study was to explore the viewpoints of parents of young people with Autism Spectrum Disorder (ASD) in relation to their child's transition to adulthood. Methods Data were collected during four structured focus groups with 19 parents of young people with ASD with average to high intellectual capacities. Condensed meaning units were identified and checked during focus groups, and were subsequently linked to the International Classification of Functioning, Disability and Health (ICF). Results Three major themes emerged: to be understood, to understand the world and to succeed. The ICF domains of activity and participation and environmental factors emerged as having the greatest potential to influence transition outcomes. Conclusions Policies and services should focus on strengths to maximise participation in higher education, employment and independent living amongst young people with ASD. Interventions targeting environmental factors could be effective in improving participation in adult life. Person-centred and individualised approaches could further complement this approach supporting the transition to adulthood for people with ASD, ultimately improving outcomes in adulthood.
引用
收藏
页数:16
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