Scoping the psychological support practices of Australian health professionals working with people with primary brain tumor and their families

被引:14
作者
Ownsworth, Tamara [1 ,2 ]
Lion, Katarzyna [1 ,2 ]
Sansom-Daly, Ursula M. [3 ,4 ,5 ]
Pike, Kerryn [6 ,7 ]
Koh, Eng-Siew [8 ,9 ,10 ]
Halkett, Georgia K. B. [11 ]
Pinkham, Mark B. [12 ,13 ]
Chan, Raymond J. [14 ]
Dhillon, Haryana M. [15 ,16 ]
机构
[1] Queensland Griffith Univ, Sch Appl Psychol, Brisbane, Qld, Australia
[2] Queensland Griffith Univ, Hopkins Ctr, Menzies Hlth Inst, Brisbane, Qld, Australia
[3] UNSW Sydney, Sch Womens & Childrens Hlth, UNSW Med & Hlth, Kensington, NSW, Australia
[4] Sydney Childrens Hosp, Behav Sci Unit, Kids Canc Ctr, Randwick, NSW, Australia
[5] Prince Wales Hosp, Nelune Comprehens Canc Ctr, Sydney Youth Canc Serv, Randwick, NSW, Australia
[6] La Trobe Univ, Sch Psychol & Publ Hlth, Bundoora, Vic, Australia
[7] La Trobe Univ, John Richards Ctr Rural Ageing Res, Bundoora, Vic, Australia
[8] Univ New South Wales, South Western Sydney Clin Sch, Fac Med, Sydney, NSW, Australia
[9] Liverpool & Macarthur Canc Therapy Ctr, Liverpool, Merseyside, Australia
[10] Ingham Inst Appl Med Res, Liverpool, Merseyside, Australia
[11] Curtin Univ, Curtin Sch Nursing, Fac Hlth Sci, Perth, Australia
[12] Univ Queensland, Sch Med, Woolloongabba, Qld, Australia
[13] Princess Alexandra Hosp, Dept Radiat Oncol, Woolloongabba, Qld, Australia
[14] Flinders Univ S Australia, Coll Nursing & Hlth Sci, Caring Futures Inst, Bedford Pk, SA, Australia
[15] Univ Sydney, Fac Sci, Sch Psychol, Psychooncol Cooperat Res Grp, Sydney, NSW, Australia
[16] Univ Sydney, Ctr Med Psychol & Evidence Based Decis Making, Sch Psychol, Sydney, NSW, Australia
关键词
brain tumor; cancer; health professionals; psycho-oncology; psychosocial support; HIGH-GRADE GLIOMA; COGNITIVE REHABILITATION; PSYCHOSOCIAL CARE; DEPRESSION; CAREGIVERS; ANXIETY; CANCER;
D O I
10.1002/pon.5929
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Objectives This study aimed to scope the psychological support practices of Australian health professionals providing supportive care to adults with primary brain tumor. Method Health professionals from multidisciplinary organizations and cancer support services completed an online survey focused on psychological support for people with brain tumor (PwBT) and family members, and perceived barriers or gaps in support provision. Results 107 professionals, mainly from psychology (45%), nursing (20%), and social work (10%) backgrounds, completed the survey. Scope of practice differed according to discipline, with psychologists and nurses most likely to screen for psychological distress (71%-76%), and psychologists more typically providing at least one psychological support session (78%). Psychologists were more likely to screen for cognitive impairment (31%), whereas nurses and social workers more commonly provided family-based support (62%-73%). Psychological support was more frequently provided in the long-term management phase (78%) than early post-diagnosis/treatment (45%). System-level barriers to accessing psychological support were most frequently identified, which included limited resources and funding, insufficient staff time, lengthy waitlists and costs, poor service coordination, and lack of staff with brain tumor-specific training. Conclusions The provision of psychological support for PwBT varies according to discipline, setting and management phase. Further research on different models of psychosocial care is needed to inform strategies to address organizational and policy factors impacting professionals' scope of practice.
引用
收藏
页码:1313 / 1321
页数:9
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