Living (well) with cancer in the precision era

被引:8
作者
Broom, Alex [1 ]
Kenny, Katherine [1 ]
Veazey, Leah Williams [1 ]
Page, Alexander [1 ]
Prainsack, Barbara [2 ]
Wake, Claire E. [3 ,4 ]
Khasraw, Mustafa [5 ]
Itchins, Malinda [6 ,7 ]
Lwin, Zarnie [8 ,9 ]
机构
[1] Univ Sydney, Sch Social & Polit Sci, Sydney Ctr Hlth Soc, Camperdown, NSW 2006, Australia
[2] Univ Vienna, Dept Polit Sci, Vienna, Austria
[3] UNSW Sydney, Discipline Paediat & Child Hlth, Sch Clin Med, UNSW Med & Hlth, Randwick Clin Campus, Sydney, NSW, Australia
[4] Sydney Childrens Hosp, Kids Canc Ctr, Behav Sci Unit, Sydney, NSW, Australia
[5] Duke Univ, Duke Canc Inst, Durham, NC USA
[6] Univ Sydney, Northern Clin Sch, St Leonards, NSW, Australia
[7] Royal North Shore Hosp, Dept Med Oncol, St Leonards, NSW, Australia
[8] Royal Brisbane & Womens Hosp, Dept Med Oncol, Herston, Qld, Australia
[9] Univ Queensland, Fac Med, St Lucia, Qld, Australia
来源
SSM-QUALITATIVE RESEARCH IN HEALTH | 2022年 / 2卷
基金
英国医学研究理事会; 澳大利亚研究理事会;
关键词
Precision medicine; Cancer; Qualitative; Diaries; Survivorship; CHRONIC ILLNESS; DIARY; SELF; EXPERIENCES; MANAGEMENT; CARE;
D O I
10.1016/j.ssmqr.2022.100096
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Surviving cancer in the precision era of targeted drugs and immunotherapies increasingly involves surviving-with malignancy. Against this backdrop of precision, innovation and chronicity, this paper offers a person-centred examination of some of the emerging intersections of chronic living and cancer treatment. Using a temporally extended qualitative methodology drawing on solicited diaries and successive in-depth interviews with people receiving precision cancer therapies, we focus on the often opaque worlds of surviving-with cancer, day-to-day, amidst the evolving scene of therapeutic innovation. Tracing how elements of the catastrophic and the mundane are braided through these everyday experiences, we seek to provide an embodied and temporally extended account of everyday life, beyond the binaries of presence/absence of disease, or of death/cure. In so doing, we consider how the normative expectations of treatment, bodies, care and emotions are being reshaped, elevating the moral work of the precision-cancer intersection.
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页数:9
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