Integrating Patient Concerns into Parkinson's Disease Management

被引：43
作者：
Lim, Shen-Yang [1 ,2 ]
Tan, Ai Huey [1 ,2 ]
Fox, Susan H.
Evans, Andrew H. [3 ,4 ]
Low, Soon Chai [1 ]
机构：
[1] Univ Malaya, Div Neurol, Kuala Lumpur, Malaysia
[2] Univ Malaya, Mah Pooi Soo & Tan Chin Nam Ctr Parkinsons & Rela, Kuala Lumpur, Malaysia
[3] Univ Toronto, Toronto Western Hosp, Movement Disorder Clin, Toronto, ON, Canada
[4] Royal Melbourne Hosp, Dept Neurol, Parkville, Vic, Australia
来源：
CURRENT NEUROLOGY AND NEUROSCIENCE REPORTS | 2017年 / 17卷 / 01期
关键词：
Parkinson's disease; Patient-centred care; Patient perspective; Patient satisfaction; Non-motor symptoms; Quality of life; Natural history; Knowledge and awareness; Caregiver burden; Specialty care; Telemedicine; Telehealth; Mobile health technology; Sensors; Personalized medicine; Economic burden; Work; MILD COGNITIVE IMPAIRMENT; QUALITY-OF-LIFE; NONMOTOR SYMPTOMS; PALLIATIVE CARE; PATIENTS PERSPECTIVE; ECONOMIC BURDEN; IMPULSE CONTROL; HEALTH-CARE; PROSPECTIVE COHORT; CLINICAL SUBTYPES;
D O I：
10.1007/s11910-017-0717-2
中图分类号：
R74 [神经病学与精神病学];
学科分类号：
摘要：
Parkinson's disease (PD) is a complex motor and non-motor disorder and management is often challenging. In this review, we explore emerging approaches to improve the care of patients, drawing from the literature regarding patient-centred care, patient and caregiver perspectives and priorities, gaps in knowledge among patients and caregivers and the need for accurate information, individual variability in disease manifestations, prognostication of disease course, new developments in health technologies and personalized medicine, specialty care, pharmacological and non-pharmacological management, financial burden, lifestyle and work-related issues, support groups and palliative care.
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页数：12
相关论文
共 141 条
[1]  
Aarsland D, 1999, INT J GERIATR PSYCH, V14, P866, DOI 10.1002/(SICI)1099-1166(199910)14:10<866::AID-GPS38>3.0.CO
[2]  
2-Z
[3]   Depression in Parkinson disease-epidemiology, mechanisms and management [J].
Aarsland, Dag ;
Pahlhagen, Sven ;
Ballard, Clive G. ;
Ehrt, Uwe ;
Svenningsson, Per .
NATURE REVIEWS NEUROLOGY, 2012, 8 (01) :35-47
[4]   Progression of motor impairment and disability in Parkinson disease - A population-based study [J].
Alves, G ;
Wentzel-Larsen, T ;
Aarsland, D ;
Larsen, JP .
NEUROLOGY, 2005, 65 (09) :1436-1441
[5]   Changes in motor subtype and risk for incident dementia in Parkinson's disease [J].
Alves, Guido ;
Petter Larsen, Jan ;
Emre, Murat ;
Wentzel-Larsen, Tore ;
Aarsland, Dag .
MOVEMENT DISORDERS, 2006, 21 (08) :1123-1130
[6]   Which features of Parkinson's disease predict earlier exit from the workforce? [J].
Armstrong, Melissa J. ;
Gruber-Baldini, Ann L. ;
Reich, Stephen G. ;
Fishman, Paul S. ;
Lachner, Christian ;
Shulman, Lisa M. .
PARKINSONISM & RELATED DISORDERS, 2014, 20 (11) :1257-1259
[7]   Ten year survival and outcomes in a prospective cohort of new onset Chinese Parkinson's disease patients [J].
Auyeung, Man ;
Tsoi, T. H. ;
Mok, Vincent ;
Cheung, C. M. ;
Lee, C. N. ;
Li, R. ;
Yeung, E. .
JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 2012, 83 (06) :607-611
[8]   The Priamo Study: A Multicenter Assessment of Nonmotor Symptoms and Their Impact on Quality of Life in Parkinson's Disease [J].
Barone, Paolo ;
Antonini, Angelo ;
Colosimo, Carlo ;
Marconi, Roberto ;
Morgante, Letterio ;
Avarello, Tania P. ;
Bottacchi, Eugenio ;
Cannas, Antonino ;
Ceravolo, Gabriella ;
Ceravolo, Roberto ;
Cicarelli, Giulio ;
Gaglio, Roberto M. ;
Giglia, Rosa M. ;
Iemolo, Francesco ;
Manfredi, Michela ;
Meco, Giuseppe ;
Nicoletti, Alessandra ;
Pederzoli, Massimo ;
Petrone, Alfredo ;
Pisani, Antonio ;
Ponfieri, Francesco E. ;
Quatrale, Rocco ;
Ramat, Silvia ;
Scala, Rosanna ;
Volpe, Giuseppe ;
Zappulla, Salvatore ;
Bentivoglio, Anna Rita ;
Stocchi, Fabrizio ;
Trianni, Giorgio ;
Del Dotto, Paolo .
MOVEMENT DISORDERS, 2009, 24 (11) :1641-1649
[9]   Getting it right: why bother with patient-centred care? [J].
Bauman, AE ;
Fardy, HJ ;
Harris, PG .
MEDICAL JOURNAL OF AUSTRALIA, 2003, 179 (05) :253-256
[10]  
Bierstock S, 2012, WALL STREET J
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