The Global Landscape of Nursing and Genomics

被引:71
作者
Calzone, Kathleen A. [1 ]
Kirk, Maggie [2 ]
Tonkin, Emma [3 ]
Badzek, Laurie [4 ]
Benjamin, Caroline [5 ]
Middleton, Anna [6 ]
机构
[1] NCI, NIH, Ctr Canc Res, Genet Branch, 37 Convent Dr,Bldg 37,RM 6002C,MSC 4256, Bethesda, MD 20892 USA
[2] Univ South Wales, Genet Educ, Pontypridd, M Glam, Wales
[3] Univ South Wales, Pontypridd, M Glam, Wales
[4] Univ N Carolina, Wilmington Sch Nursing, Wilmington, SC USA
[5] Liverpool Womens NHS Hosp Trust, Preston England & Genet Counsellor, Univ Cent Lancashire, Coll Hlth & Wellbeing, Liverpool, Merseyside, England
[6] Wellcome Genome Campus, Head Soc & Eth Res, Connecting Sci, Hinxton, Cambs, England
基金
美国国家卫生研究院;
关键词
Education; Genetics; Heredity; International Health; Global Health; Nursing Practice; Policy; PRECISION MEDICINE; COMPETENCE; HEALTH; CHALLENGES; EDUCATION; SERVICES; GENETICS; NURSES;
D O I
10.1111/jnu.12380
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
PurposeNurses have a pivotal role in bringing the benefits of genomics and precision medicine to everyday health care, but a concerted global effort is needed to transform nursing policy and practice to address widely acknowledged deficits in nurses' genomic literacy. The purpose was to conduct a global country and organization review of nursing engagement with genomics, informing a landscape analysis to assess readiness for integration of genomics into nursing. DesignGlobal nursing leaders and nursing organizations were recruited using a purposive sampling strategy to complete an online survey that assessed the scope of genomic integration in practice and education, challenges and barriers, and priorities for action. MethodsThe survey was administered online following an orientation webinar. Given the small numbers of nurse leaders globally, results were analyzed and presented descriptively. FindingsDelegates consisted of 23 nurse leaders from across the world. Genomic services were offered predominantly in specialty centers consisting mostly of newborn screening (15/18) and prenatal screening (11/18). Genomic literacy and infrastructure deficits were identified in both practice and education settings, with only one country reporting a genetic/genomic knowledge and skill requirement to practice as a general nurse. ConclusionsThese data provide insights into the commitment to and capacity for nursing to integrate genomics, revealing common themes and challenges associated with adoption of genomic health services and integration into practice, education, and policy. Such insights offer valuable context and baseline information to guide the activities of a new Global Genomics Nursing Alliance (G2NA). The G2NA will use the landscaping exercise as a springboard to explore how to accelerate the integration of genomics into nursing healthcare. Clinical RelevanceGenomics is relevant to all healthcare providers across the healthcare continuum. It provides an underpinning for understanding health, risks for and manifestations of disease, therapeutic decisions, development of new therapies, and responses to interventions. Harnessing the benefits of genomics to improve health and care outcomes and reduce costs is a global nursing challenge.
引用
收藏
页码:249 / 256
页数:8
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