Challenges and facilitators in supporting sustainable participation after rehabilitation: Experiences of immigrant parents and their children with disabilities

被引:1
作者
Arfa, Shahrzad [1 ,2 ]
Solvang, Per Koren [3 ]
Berg, Berit [4 ]
Jahnsen, Reidun [1 ,5 ,6 ]
机构
[1] Beitostolen Healthsports Ctr, Res Dept, Sentervegen 4, N-2953 Beitostolen, Norway
[2] Oslo Metropolitan Univ, Fac Hlth Sci, Oslo, Norway
[3] Oslo Metropolitan Univ, Dept Physiotherapy, Oslo, Norway
[4] Norwegian Univ Sci & Technol, Dept Social Work, Trondheim, Norway
[5] Oslo Univ Hosp, Dept Clin Neurosci Children, Oslo, Norway
[6] Univ Oslo, Res Ctr Habilitat & Rehabil Models & Serv, Inst Hlth & Soc, CHARM, Oslo, Norway
关键词
Participation; immigrant families; parents; children with disabilities; rehabilitation; physical activity; local community;
D O I
10.1080/11038128.2020.1856183
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Background Children with immigrant backgrounds and disabilities have lower rates of social participation compared with their non-immigrant counterparts. However, rehabilitation programmes offer an opportunity to promote a physically active lifestyle and increase home and community participation of children with disabilities. Objectives By exploring immigrant families' experiences of participation and associated challenges and facilitators after rehabilitation, the study intended to contribute to the development of potential pathways in supporting sustainable community-based participation. Methods The study used a qualitative approach with semi-structured interviews. Results The costs and lack of information, necessary skills, and local activities were among the barriers that families experienced after the rehabilitation. Local and rehabilitation professionals were not always aware of or prepared to address the challenges faced by families trying to become physically active. Parents expressed their needs for support and continuation of services after rehabilitation for moving towards an active lifestyle. Participation patterns among children highlighted the potential role of support contacts as facilitators for participation in physical activities among the families. Conclusions Establishing an efficient collaboration between local and rehabilitation professionals with identifying potential future challenges, adjusting the interventions, clarifying roles and responsibilities, and providing supportive follow-up services may support sustainable community-based participation among immigrant families.
引用
收藏
页码:631 / 644
页数:14
相关论文
共 63 条
[1]   Municipal Cross-Disciplinary Rehabilitation following Stroke in Denmark and Norway: A Qualitative Study [J].
Aadal, Lena ;
Pallesen, Hanne ;
Arntzen, Cathrine ;
Moe, Siri .
REHABILITATION RESEARCH AND PRACTICE, 2018, 2018
[2]   The effect of the environment on participation of children and youth with disabilities: a scoping review [J].
Anaby, Dana ;
Hand, Carri ;
Bradley, Laura ;
DiRezze, Briano ;
Forhan, Mary ;
DiGiacomo, Anthony ;
Law, Mary .
DISABILITY AND REHABILITATION, 2013, 35 (19) :1589-1598
[3]  
[Anonymous], GLOB STRAT DIET PHYS
[4]  
[Anonymous], 2019, PERS SUPP CONT
[5]   An exploratory study of parents' approaches to health promotion in families of adolescents with physical disabilities [J].
Antle, B. J. ;
Mills, W. ;
Steele, C. ;
Kalnins, I. ;
Rossen, B. .
CHILD CARE HEALTH AND DEVELOPMENT, 2008, 34 (02) :185-193
[6]   Family factors associated with participation of children with disabilities: a systematic review [J].
Arakelyan, Stella ;
Maciver, Donald ;
Rush, Robert ;
O'hare, Anne ;
Forsyth, Kirsty .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2019, 61 (05) :514-+
[7]   Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway [J].
Arfa, Shahrzad ;
Solvang, Per Koren ;
Berg, Berit ;
Jahnsen, Reidun .
BMC HEALTH SERVICES RESEARCH, 2020, 20 (01)
[8]   Having Fun and Staying Active! Children with Disabilities and Participation in Physical Activity: A Follow-Up Study [J].
Baksjoberget, Per Enok ;
Nyquist, Astrid ;
Moser, Thomas ;
Jahnsen, Reidun .
PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS, 2017, 37 (04) :347-358
[9]   Community Participation, Supports, and Barriers of School-Age Children With and Without Disabilities [J].
Bedell, Gary ;
Coster, Wendy ;
Law, Mary ;
Liljenquist, Kendra ;
Kao, Ying-Chia ;
Teplicky, Rachel ;
Anaby, Dana ;
Khetani, Mary Alunkal .
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2013, 94 (02) :315-323
[10]  
Braun Virginia., 2006, QUAL RES PSYCHOL, V3, DOI DOI 10.1191/1478088706QP063OA