Discussing dying in the diaspora: Attitudes towards advance care planning among first generation Dutch and Italian migrants in rural Australia

被引:35
作者
Sinclair, Craig [1 ,2 ]
Smith, Jessica [1 ,2 ]
Toussaint, Yann [2 ]
Auret, Kirsten [1 ,2 ]
机构
[1] Rural Clin Sch Western Australia, Kalgoorlie, WA 6433, Australia
[2] Univ Western Australia, Albany, WA 6330, Australia
关键词
Australia; Advance care planning; End-of-life; Cross-cultural; Migration; Foucauldian; END-OF-LIFE; CULTURAL SIMILARITIES; DECISION-MAKING; HEALTH-SERVICES; AGED-CARE; DIRECTIVES; EUTHANASIA; BARRIERS; EXPERIENCES; DIVERSITY;
D O I
10.1016/j.socscimed.2013.11.032
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Western cultural practices and values have largely shaped advance care planning (ACP) policies across the world. Low uptake of ACP among ethnic minority groups in Western countries has been interpreted with reference to cultural differences. This paper adopts a life-history approach to explore attitudes towards ACP among older, first-generation Dutch-Australian and Italian-Australian migrants. Thirty people participated in extended ethnographic interviews (N = 17) and group discussions (N = 13) during 2012. Transcripts were thematically analyzed and interpreted using a Foucauldian perspective on knowledge and power. Migration experiences, ongoing contact with the native country and participation in migrant community support networks influenced attitudes towards ACP. Dutch participants framed ACP discussions with reference to euthanasia, and adopted a more individualist approach to medical decision-making. Italian participants often spoke of familial roles and emphasized a family-based decision making style. The importance of migrant identity has been neglected in previous discussions of cultural factors influencing ACP uptake among ethnic minority groups. The unique migration experience should be considered alongside culturally appropriate approaches to decision-making, in order to ensure equitable access to ACP among migrant groups. (C) 2013 Elsevier Ltd. All rights reserved.
引用
收藏
页码:86 / 93
页数:8
相关论文
共 70 条
[31]   Culture and End of Life Care: A Scoping Exercise in Seven European Countries [J].
Gysels, Marjolein ;
Evans, Natalie ;
Menaca, Arantza ;
Andrew, Erin ;
Toscani, Franco ;
Finetti, Sylvia ;
Pasman, H. Roeline ;
Higginson, Irene ;
Harding, Richard ;
Pool, Robert .
PLOS ONE, 2012, 7 (04)
[32]   Culturally and linguistically diverse peoples' knowledge of accessibility and utilisation of health services: exploring the need for improvement in health service delivery [J].
Henderson, Saras ;
Kendall, Elizabeth .
AUSTRALIAN JOURNAL OF PRIMARY HEALTH, 2011, 17 (02) :195-201
[33]   An exploration of reminiscence and post-war European immigrants living in a multicultural aged-care setting in Australia [J].
Hodges, Cherie ;
Schmidt, Rachael .
OCCUPATIONAL THERAPY INTERNATIONAL, 2009, 16 (02) :154-168
[34]   What explains racial differences in the use of advance directives and attitudes toward hospice care? [J].
Johnson, Kimberly S. ;
Kuchibhatla, Maragatha ;
Tulsky, James A. .
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2008, 56 (10) :1953-1958
[35]   Ethics and Advance Care Planning in a Culturally Diverse Society [J].
Johnstone, Megan-Jane ;
Kanitsaki, Olga .
JOURNAL OF TRANSCULTURAL NURSING, 2009, 20 (04) :405-416
[36]   Korean American Adult Children's Beliefs about What Their Parents Want at the End of Life [J].
Kim, Minju ;
Foreman, Marquis D. .
CLINICAL GERONTOLOGIST, 2011, 34 (04) :305-318
[37]  
Low James Alvin, 2009, Perm J, V13, P11
[38]   Future research on dementia relating to culturally and linguistically diverse communities [J].
Low, Lee-Fay ;
Draper, Brian ;
Cheng, Ada ;
Cruysmans, Benedict ;
Hayward-Wright, Nicky ;
Jeon, Yun-Hee ;
LoGiudice, Dina ;
Wu, Helen Zong Ying ;
Zogalis, Georgia ;
Brodaty, Henry .
AUSTRALASIAN JOURNAL ON AGEING, 2009, 28 (03) :144-148
[39]   Euthanasia, therapeutic obstinacy or something else? An Italian case [J].
Maggiore, SM ;
Antonelli, M .
INTENSIVE CARE MEDICINE, 2005, 31 (07) :997-998
[40]  
Manderson Lenore, 2003, Med Anthropol, V22, P1, DOI 10.1080/01459740306767