Siblings Caring for and about Pediatric Palliative Care Patients

被引：34

作者：

Gaab, Erin M. ^{[1
]}

Owens, Glynn R. ^{[2
]}

MacLeod, Roderick D. ^{[3
,4
]}

机构：

[1] Univ Calif, Hlth Sci Res Inst, Merced, CA 95340 USA

[2] Univ Auckland, Dept Psychol, Auckland 1, New Zealand

[3] HammondCare, Sydney, NSW, Australia

[4] Univ Sydney, Sydney, NSW 2006, Australia

来源：

JOURNAL OF PALLIATIVE MEDICINE | 2014年 / 17卷 / 01期

关键词：

CHILDREN; ADOLESCENTS; CAREGIVERS; SUPPORT; DEATH;

D O I：

10.1089/jpm.2013.0117

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Background: The experiences of young people who have siblings with life-limiting illnesses are not well understood. Aim: The study proposed to identify the concerns of siblings of pediatric palliative care (PPC) patients. Design and Measurement: Semistructured interviews were administered to participants and analyzed using qualitative inductive thematic analysis. Setting and Participants: Study subjects were 18 siblings of PPC patients aged 9 to 22 living in the Auckland area. Results: The siblings of PPC patients held concerns about their siblings' impending death and desires to be involved in their lives and care. Conclusions: Siblings may benefit from opportunities to be involved in conversations about mortality and the care of their ill sibling. They are able to express their concerns and help provide care to PPC patients.

引用

页码：62 / 67

页数：6

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