Medical consensus, guidelines, and position papers: A policy for the ECFS

被引：28

作者：

De Boeck, K. ^{[1
]}

Castellani, C. ^{[2
]}

Elborn, J. S. ^{[3
,4
]}

机构：

[1] Univ Hosp Gasthuisberg, Dept Pediat, B-3000 Louvain, Belgium

[2] Azienda Ospedaliera Univ Integrata, Cyst Fibrosis Ctr, Verona, Italy

[3] Queens Univ, Ctr Infect & Immun, Belfast, Antrim, North Ireland

[4] BHSCT, Adult CF Ctr, Belfast, Antrim, North Ireland

来源：

JOURNAL OF CYSTIC FIBROSIS | 2014年 / 13卷 / 05期

关键词：

Medical consensus; Guidelines; Position Paper; Cystic Fibrosis; EUROPEAN CYSTIC-FIBROSIS; SOCIETY STANDARDS; CARE; MANAGEMENT;

D O I：

10.1016/j.jcf.2014.06.012

中图分类号：

R56 [呼吸系及胸部疾病];

学科分类号：

摘要：

The terms consensus, guideline and position paper are sometimes employed as if they were interchangeable, but the purpose of such documents and the robustness of advice vary as the evidence base does not have the same depth in each. The Board of the European Cystic Fibrosis Society deemed it to be helpful to provide a short commentary on the definition of these terms, on their interconnections and on how ECFS considers them in documents endorsed by the society. (C) 2014 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.

引用

页码：495 / 498

页数：4

共 14 条

[1] Cystic fibrosis research in allied health and nursing professions [J].

Bradley, Judy M. ;

Madge, Susan ;

Morton, Alison M. ;

Quittner, Alexandra L. ;

Elborn, J. Stuart .

JOURNAL OF CYSTIC FIBROSIS, 2012, 11 (05) :387-392

[2]

Cam KM, 2002, AMIA 2002 SYMPOSIUM, PROCEEDINGS, P990

[3] Benchmarks for Cystic Fibrosis carrier screening: A European consensus document [J].

Castellani, Carlo ;

Macek, Milan, Jr. ;

Cassiman, Jean-Jacques ;

Duff, Alistair ;

Massie, John ;

ten Kate, Leo P. ;

Barton, David ;

Cutting, Garry ;

Dallapiccola, Bruno ;

Dequeker, Elisabeth ;

Girodon, Emmanuelle ;

Grody, Wayne ;

Highsmith, Edward W. ;

Kaariainen, Helenal ;

Kruip, Stephan ;

Morris, Michael ;

Pignatti, Pier Franco ;

Pypops, Ulrike ;

Schwarz, Martin ;

Soller, Maria ;

Stuhrman, Manfred ;

Cuppens, Harry .

JOURNAL OF CYSTIC FIBROSIS, 2010, 9 (03) :165-178

[4] European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre [J].

Conway, Steven ;

Balfour-Lynn, Ian M. ;

De Rijcke, Karleen ;

Drevinek, Pavel ;

Foweraker, Juliet ;

Havermans, Trudy ;

Heijerman, Harry ;

Lannefors, Louise ;

Lindblad, Anders ;

Macek, Milan ;

Madge, Sue ;

Moran, Maeve ;

Morrison, Lisa ;

Morton, Alison ;

Noordhoek, Jacquelien ;

Sands, Dorota ;

Vertommen, Anneke ;

Peckham, Daniel .

JOURNAL OF CYSTIC FIBROSIS, 2014, 13 :S3-S22

[5] Advancing Clinical Practice and Policy through Guidelines The Role of the American Thoracic Society [J].

Cooke, Colin R. ;

Gould, Michael K. .

AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2013, 187 (09) :910-914

[6] Treatment of lung infection in patients with cystic fibrosis: Current and future strategies [J].

Doering, Gerd ;

Flume, Patrick ;

Heijerman, Harry ;

Elborn, J. Stuart ;

Angyalosi, G. ;

Assael, B. ;

Bell, S. ;

Bilton, D. ;

De Boeck, K. ;

Bush, A. ;

Campbell, P. W., III ;

Cattaneo, A. ;

Dembowsky, K. ;

Drevinek, P. ;

Dubois, C. ;

Eichler, I. ;

Elborn, J. S. ;

Flume, P. A. ;

Foweraker, J. E. ;

Gallagher, C. ;

Gartner, S. ;

Geller, D. E. ;

Goldman, M. ;

Goss, C. H. ;

Gupta, R. ;

Heijerman, H. G. ;

Henig, N. ;

Higgins, M. ;

Hjelte, L. ;

Hoiby, N. ;

Jongejan, R. ;

Knoch, M. ;

Konstan, M. W. ;

Muhlebach, M. S. ;

Nieuwenhuizen, P. W. ;

Parkins, M. D. ;

Pressler, T. ;

Quittner, A. L. ;

Ratjen, F. ;

Ramsey, B. W. ;

Smyth, A. ;

Thieroff-Ekerdt, R. ;

Tullis, E. ;

van der Ent, C. K. ;

Vazquez, C. ;

Wainwright, C. E. .

JOURNAL OF CYSTIC FIBROSIS, 2012, 11 (06) :461-479

[7]

Field MJ, 1990, HLTH SERVICE CLIN PR

[8] A European consensus for the evaluation and management of infants with an equivocal diagnosis following newborn screening for cystic fibrosis [J].

Mayell, S. J. ;

Munck, A. ;

Craig, J. V. ;

Sermet, I. ;

Brownlee, K. G. ;

Schwarz, M. J. ;

Castellani, C. ;

Southern, K. W. .

JOURNAL OF CYSTIC FIBROSIS, 2009, 8 (01) :71-78

[9] Cystic Fibrosis Pulmonary Guidelines Chronic Medications for Maintenance of Lung Health [J].

Mogayzel, Peter J., Jr. ;

Naureckas, Edward T. ;

Robinson, Karen A. ;

Mueller, Gary ;

Hadjiliadis, Denis ;

Hoag, Jeffrey B. ;

Lubsch, Lisa ;

Hazle, Leslie ;

Sabadosa, Kathy ;

Marshall, Bruce .

AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2013, 187 (07) :680-689

[10] NICE: Moving Onward [J].

Rawlins, Michael D. .

NEW ENGLAND JOURNAL OF MEDICINE, 2013, 369 (01) :3-5

← 1 2 →