What instruments should we use to assess paediatric decision-making interventions? A narrative review

被引:8
作者
Robertson, Eden G. [1 ,2 ]
Cohen, Jennifer [1 ,2 ]
Signorelli, Christina [1 ,2 ]
Grant, David M. [1 ]
Fardell, Joanna E. [1 ,2 ]
Wakefield, Claire E. [1 ,2 ]
机构
[1] Univ New South Wales, Sch Womens & Childrens Hlth, Kensington, NSW, Australia
[2] Sydney Childrens Hosp, Behav Sci Unit, Kids Canc Ctr, Sydney, NSW, Australia
基金
英国医学研究理事会;
关键词
Decision-making; evaluation; survey design; validation; psychometrics; paediatrics; RANDOMIZED CONTROLLED-TRIAL; AID; PARENTS; CHILDREN; SUPPORT; CARE; INVOLVEMENT; VALIDATION; DISORDER; ONCOLOGY;
D O I
10.1177/1367493519869717
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
There is an increasing number of shared decision-making (SDM) interventions in paediatrics. However, there is little consensus as to the best instruments to assess the feasibility and impact of these interventions. This narrative review aims to answer: (1) what feasibility, knowledge and decision-making instruments have been used to assess paediatric SDM interventions and (2) what are the psychometric properties of used decision-making instruments, guided by the 'consensus-based standards for the selection of health measurement instrument' criteria. We conducted a review of the peer-reviewed literature. We identified 23 studies that evaluated a paediatric intervention to facilitate SDM for a specific health decision. Eighteen studies assessed intervention feasibility, with a wide variability in assessment between studies. Twelve studies assessed objective knowledge, and four studies assessed subjective knowledge with all but one study aggregating correct responses. We identified nine decision-making instruments that had been assessed psychometrically, although few had been thoroughly evaluated. The Decisional Conflict Scale was the most commonly-used instrument and the only instrument evaluated in paediatrics. Our study revealed a lack of consistency in the instruments used to evaluate decision-making interventions in paediatrics, making it difficult to compare interventions. We provide several recommendations for researchers to improve the assessment of SDM interventions in paediatrics.
引用
收藏
页码:458 / 472
页数:15
相关论文
共 55 条
[1]   The evaluation of a question prompt list for attention-deficit/hyperactivity disorder in pediatric care: A pilot study [J].
Ahmed, Rana ;
McCaffery, Kirsten J. ;
Silove, Natalie ;
Butow, Phyllis ;
Clarke, Simon ;
Kohn, Michael ;
Aslani, Parisa .
RESEARCH IN SOCIAL & ADMINISTRATIVE PHARMACY, 2017, 13 (01) :172-186
[2]   A decision aid for considering indomethacin prophylaxis vs. symptomatic treatment of PDA for extreme low birth weight infants [J].
AlFaleh, Khalid M. ;
Al Luwaimi, Eman ;
AlKharfi, Turki M. ;
Al-Alaiyan, Saleh A. .
BMC PEDIATRICS, 2011, 11
[3]   Fertility Preservation in Children and Adolescents With Cancer: Pilot of a Decision Aid for Parents of Children and Adolescents With Cancer [J].
Allingham, Catherine ;
Gillam, Lynn ;
McCarthy, Maria ;
Zacharin, Margaret ;
Jayasuriya, Sadunee ;
Heloury, Yves ;
Orme, Lisa ;
Sullivan, Michael ;
Peate, Michelle ;
Jayasinghe, Yasmin .
JMIR PEDIATRICS AND PARENTING, 2018, 1 (02)
[4]  
American Educational Research Association APANCoMiE, 2014, STAND ED PSYCH TEST
[5]  
Bejarano C., 2015, CLIN PRACT PEDIAT PS, V3, P25, DOI DOI 10.1037/CPP0000086
[6]   How We Design Feasibility Studies [J].
Bowen, Deborah J. ;
Kreuter, Matthew ;
Spring, Bonnie ;
Cofta-Woerpel, Ludmila ;
Linnan, Laura ;
Weiner, Diane ;
Bakken, Suzanne ;
Kaplan, Cecilia Patrick ;
Squiers, Linda ;
Fabrizio, Cecilia ;
Fernandez, Maria .
AMERICAN JOURNAL OF PREVENTIVE MEDICINE, 2009, 36 (05) :452-457
[7]   Validation of a decision regret scale [J].
Brehaut, JC ;
O'Connor, AM ;
Wood, TJ ;
Hack, TF ;
Siminoff, L ;
Gordon, E ;
Feldman-Stewart, D .
MEDICAL DECISION MAKING, 2003, 23 (04) :281-292
[8]   Shared decision-making to improve attention-deficit hyperactivity disorder care [J].
Brinkman, William B. ;
Majcher, Jessica Hartl ;
Poling, Lauren M. ;
Shi, Gaoyan ;
Zender, Mike ;
Sucharew, Heidi ;
Britto, Maria T. ;
Epstein, Jeffery N. .
PATIENT EDUCATION AND COUNSELING, 2013, 93 (01) :95-101
[9]  
Bunn H, 1996, Can J Nurs Res, V28, P13
[10]  
Carlon S, 2017, AUSTRALAS J SPEC EDU, V41, P141, DOI 10.1017/jse.2017.7