Patient Reported Outcomes as Indicators of Pediatric Health Care Quality

被引:28
作者
Bevans, Katherine B. [1 ,2 ]
Moon, JeanHee [3 ]
Carle, Adam C. [4 ,5 ]
Mara, Constance A. [6 ]
Lai, Jin-Shei [7 ]
DiMarco, Lindsay [8 ]
Muller, Nicole [8 ]
Woods, Donna [9 ,10 ]
机构
[1] Childrens Hosp Philadelphia, Dept Pediat, Philadelphia, PA 19104 USA
[2] Univ Penn, Sch Med, Philadelphia, PA 19104 USA
[3] Childrens Hosp Philadelphia, Dept Gen Pediat, Philadelphia, PA 19104 USA
[4] Univ Cincinnati, Coll Med, James M Anderson Ctr Hlth Syst Excellence, Dept Pediat, Cincinnati, OH USA
[5] Univ Cincinnati, Coll Arts & Sci, Dept Psychol, Cincinnati, OH USA
[6] Cincinnati Childrens Hosp, Med Ctr, James M Anderson Ctr Hlth Syst Excellence, Cincinnati, OH USA
[7] Northwestern Univ, Chicago, IL 60611 USA
[8] Northwestern Univ, Northwestern Feinberg Sch Med, Ctr Healthcare Studies, Chicago, IL 60611 USA
[9] Northwestern Univ, Ctr Healthcare Studies, Feinberg Sch Med, Grad Programs Healthcare Qual & Patient Safety, Chicago, IL 60611 USA
[10] Northwestern Univ, Ctr Healthcare Studies, Feinberg Sch Med, Northwestern Program Qual & Safety Innovat, Chicago, IL 60611 USA
基金
美国医疗保健研究与质量局;
关键词
health care quality; patient reported outcomes; pediatric; WEB-BASED APPLICATION; OF-LIFE; ASTHMA CONTROL; TASK-FORCE; INSTRUMENTS; PROMIS(R); CHILDREN;
D O I
10.1016/j.acap.2014.06.002
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Health care reform has increased demand for pediatric health care quality evaluations, particularly those that assess the impact of care on patient and population health outcomes. Many of today's most common childhood conditions are characterized by symptoms, behaviors, and functional limitations that are best assessed as patient reported outcomes (PROs). Although they remain greatly underutilized, PROs have the potential to improve pediatric health care quality assessment at the point of care and through system-level performance evaluations. The functions, benefits, and challenges of these PRO applications are described and illustrated in case examples. Although challenges remain, numerous methodological and technical innovations facilitate the use of PROs as health care quality metrics. These include advances in PRO measure development methodologies, the integration of PRO measures into electronic health records, and developing consensus among providers that PROs provide valuable information that can be used to enhance patient care. Although additional work is needed to address remaining methodological challenges, pediatric PROs are increasingly recognized as valuable indicators of health care quality in the clinical environment and as measures of organization- and provider-level performance.
引用
收藏
页码:S90 / S96
页数:7
相关论文
共 40 条
[1]  
Adams JL., 2009, The Reliability of Provider Profiling: a Tutorial
[2]  
[Anonymous], METHODOLOGICAL ISSUE
[3]  
[Anonymous], 2009, Guidance for industry: Patient-Reported outcome measures: Use in medical product development to support labeling claims
[4]  
Bevans K B., 2009, Economic Evaluation in Child Health, P33, DOI [DOI 10.1093/ACPROF:OSO/9780199547494.003.02, 10.1093/acprof:oso/9780199547494.003.02]
[5]   Qualitative Development of the PROMIS® Pediatric Stress Response Item Banks [J].
Bevans, Katherine B. ;
Gardner, William ;
Pajer, Kathleen ;
Riley, Anne W. ;
Forrest, Christopher B. .
JOURNAL OF PEDIATRIC PSYCHOLOGY, 2013, 38 (02) :173-191
[6]  
Broderick Joan E, 2013, EGEMS (Wash DC), V1, P1015, DOI 10.13063/2327-9214.1015
[7]   The Patient-Reported Outcomes Measurement Information System (PROMIS) Progress of an NIH roadmap cooperative group during its first two years [J].
Cella, David ;
Yount, Susan ;
Rothrock, Nan ;
Gershon, Richard ;
Cook, Karon ;
Reeve, Bryce ;
Ader, Deborah ;
Fries, James F. ;
Bruce, Bonnie ;
Rose, Mattias .
MEDICAL CARE, 2007, 45 (05) :S3-S11
[8]   Health-related quality-of-life assessments and patient-physician communication - A randomized controlled trial [J].
Detmar, SB ;
Muller, MJ ;
Schornagel, JH ;
Wever, LDV ;
Aaronson, NK .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2002, 288 (23) :3027-3034
[9]  
Deutsch A, PATIENT REPORTED OUT
[10]   THE QUALITY OF CARE - HOW CAN IT BE ASSESSED [J].
DONABEDIAN, A .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 1988, 260 (12) :1743-1748