Where do members of the public turn to understand what genetic tests mean in terms of their own health? Now that genome-wide association studies and complete genome sequencing are widely available, the importance of education in personalized genomics cannot be overstated. Although some media have introduced the concept of genetic testing to better understand health and disease, the public's understanding of the scope and impact of genetic variation has not kept up with the pace of the science or technology. Unfortunately, the likely sources to which the public turn to for guidance - their physician and the media - are often no better prepared. We examine several venues for information, including print and online guides for both lay and health-oriented audiences, and summarize selected resources in multiple formats. We also note on the roadblocks to progress and discuss ways to remove them, as urgent action is needed to connect people with their genomes in a meaningful way.
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Univ Otago, Sch Dent, Dept Oral Sci, Sir John Walsh Res Inst, Dunedin, New ZealandUniv Otago, Sch Dent, Dept Oral Sci, Sir John Walsh Res Inst, Dunedin, New Zealand
Knight, Ellie T.
Thomson, W. Murray
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Univ Otago, Sch Dent, Dept Oral Sci, Sir John Walsh Res Inst, Dunedin, New ZealandUniv Otago, Sch Dent, Dept Oral Sci, Sir John Walsh Res Inst, Dunedin, New Zealand
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Univ Calif San Francisco, Sch Med, Dept Biochem & Biophys, Inst Human Genet, San Francisco, CA 94143 USAUniv Calif San Francisco, Sch Med, Dept Biochem & Biophys, Inst Human Genet, San Francisco, CA 94143 USA
Hyland, Katherine
Garber, Kathryn
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Emory Univ, Sch Med, Dept Human Genet, Atlanta, GA 30307 USAUniv Calif San Francisco, Sch Med, Dept Biochem & Biophys, Inst Human Genet, San Francisco, CA 94143 USA
Garber, Kathryn
Dasgupta, Shoumita
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Boston Univ, Sch Med, Dept Med, Biomed Genet, Boston, MA 02118 USAUniv Calif San Francisco, Sch Med, Dept Biochem & Biophys, Inst Human Genet, San Francisco, CA 94143 USA
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Ctr Dis Control & Prevent, Off Genomics & Dis Prevent, Atlanta, GA 30333 USACtr Dis Control & Prevent, Off Genomics & Dis Prevent, Atlanta, GA 30333 USA
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Univ Otago, Sch Dent, Dept Oral Sci, Sir John Walsh Res Inst, Dunedin, New ZealandUniv Otago, Sch Dent, Dept Oral Sci, Sir John Walsh Res Inst, Dunedin, New Zealand
Knight, Ellie T.
Thomson, W. Murray
论文数: 0引用数: 0
h-index: 0
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Univ Otago, Sch Dent, Dept Oral Sci, Sir John Walsh Res Inst, Dunedin, New ZealandUniv Otago, Sch Dent, Dept Oral Sci, Sir John Walsh Res Inst, Dunedin, New Zealand
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Univ Calif San Francisco, Sch Med, Dept Biochem & Biophys, Inst Human Genet, San Francisco, CA 94143 USAUniv Calif San Francisco, Sch Med, Dept Biochem & Biophys, Inst Human Genet, San Francisco, CA 94143 USA
Hyland, Katherine
Garber, Kathryn
论文数: 0引用数: 0
h-index: 0
机构:
Emory Univ, Sch Med, Dept Human Genet, Atlanta, GA 30307 USAUniv Calif San Francisco, Sch Med, Dept Biochem & Biophys, Inst Human Genet, San Francisco, CA 94143 USA
Garber, Kathryn
Dasgupta, Shoumita
论文数: 0引用数: 0
h-index: 0
机构:
Boston Univ, Sch Med, Dept Med, Biomed Genet, Boston, MA 02118 USAUniv Calif San Francisco, Sch Med, Dept Biochem & Biophys, Inst Human Genet, San Francisco, CA 94143 USA
机构:
Ctr Dis Control & Prevent, Off Genomics & Dis Prevent, Atlanta, GA 30333 USACtr Dis Control & Prevent, Off Genomics & Dis Prevent, Atlanta, GA 30333 USA