"I'm Not a Spiritual Person." How Hope Might Facilitate Conversations About Spirituality Among Teens and Young Adults With Cancer

被引:34
作者
Barton, Krysta S. [1 ]
Tate, Tyler [2 ]
Lau, Nancy [1 ,3 ]
Taliesin, Karen B. [4 ]
Waldman, Elisha D. [5 ]
Rosenberg, Abby R. [1 ,3 ,6 ]
机构
[1] Seattle Childrens Res Inst, Treuman Katz Ctr Pediat Bioeth, Ctr Clin & Translat Res, Seattle, WA USA
[2] Duke Univ & Hlth Syst, Durham, NC USA
[3] Univ Washington, Dept Pediat, Seattle, WA 98195 USA
[4] Seattle Childrens Hosp, Spiritual Care, 4800 Sand Point Way NE,M-S MB8-501, Seattle, WA USA
[5] Ann & Robert H Lurie Childrens Hosp Chicago, Chicago, IL 60611 USA
[6] Seattle Childrens Hosp, Canc & Blood Disorders Ctr, 4800 Sand Point Way NE,M-S MB8-501, Seattle, WA 98145 USA
基金
美国国家卫生研究院;
关键词
Adolescent and young adult; cancer; spirituality; religion; hope; palliative care; quality of life; PALLIATIVE CARE; OF-LIFE; ADOLESCENTS; HEALTH; RESILIENCE; ASSOCIATIONS; DEFINITIONS; ATTITUDES; OUTCOMES; QUALITY;
D O I
10.1016/j.jpainsymman.2018.02.001
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Context. Supporting patients' spiritual needs is central to palliative care. Adolescents and young adults (AYAs) may be developing their spiritual identities; it is unclear how to navigate conversations concerning their spiritual needs. Objectives. To 1) describe spiritual narratives among AYAs based on their self-identification as religious, spiritual, both, or neither and 2) identify language to support AYAs' spiritual needs in keeping with their self-identities. Methods. In this mixed-methods, prospective, longitudinal cohort study, AYAs (14-25 years old) with newly diagnosed cancer self-reported their "religiousness" and "spirituality." One-on-one, semistructured interviews were conducted at three time points (within 60 days of diagnosis, six to 12 months, and 12-18 months later) and included queries about spirituality, God/prayer, meaning from illness, and evolving self-identity. Post hoc directed content analysis informed a framework for approaching religious/spiritual discussions. Results. Seventeen AYAs (mean age 17.1 years, SD = 2.7, 47% male) participated in 44 interviews. Of n = 16 with concurrent survey responses, five (31%) self-identified as both "religious and spiritual," five (31%) as "spiritual, not religious," one (6%) as "religious, not spiritual," and five (31%) as neither. Those who endorsed religiousness tended to cite faith as a source of strength, whereas many who declined this self-identity explicitly questioned their preexisting beliefs. Regardless of self-identified "religiousness" or "spirituality," most participants endorsed quests for meaning, purpose, and/or legacy, and all included constructs of hope in their narratives. Conclusion. AYA self-identities evolve during the illness experience. When words such as "religion" and "spirituality" do not fit, explicitly exploring hopes, worries, meaning, and changing life perspectives may be a promising alternative. (C) 2018 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.
引用
收藏
页码:1599 / 1608
页数:10
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