Perspective on the "African American participation in Alzheimer disease research: Effective strategies" workshop, 2018

被引:29
作者
Denny, Andrea [1 ]
Streitz, Marissa [1 ]
Stock, Kristin [2 ]
Balls-Berry, Joyce E. [1 ]
Barnes, Lisa L. [3 ]
Byrd, Goldie S. [4 ]
Croff, Raina [5 ]
Gao, Sujuan [6 ]
Glover, Crystal M. [3 ]
Hendrie, Hugh C. [7 ]
Hu, William T. [8 ]
Manly, Jennifer J. [9 ]
Moulder, Krista L. [1 ]
Stark, Susan [10 ]
Thomas, Stephen B. [11 ]
Whitmer, Rachel [12 ]
Wong, Roger [13 ]
Morris, John C. [14 ]
Lingler, Jennifer H. [15 ,16 ]
机构
[1] Washington Univ, Sch Med, Knight Alzheimer Dis Res Ctr, St Louis, MO 63108 USA
[2] Washington Univ, St Louis, MO 63108 USA
[3] Rush Univ, Rush Alzheimers Dis Ctr, Med Ctr, Chicago, IL 60612 USA
[4] Wake Forest Univ, Bowman Gray Sch Med, Maya Angelou Ctr Hlth Equ, Winston Salem, NC USA
[5] Oregon Hlth & Sci Univ, Dept Neurol, Layton Aging & Alzheimers Dis Ctr, Portland, OR 97201 USA
[6] Indiana Univ Sch Med, Dept Biostat, Indianapolis, IN 46202 USA
[7] Indiana Univ Sch Med, Dept Psychiat, Indianapolis, PA 46202 USA
[8] Emory Univ, Atlanta, GA 30322 USA
[9] Columbia Univ, Dept Neurol, Med Ctr, Taub Inst Res Alzheimers Dis & Aging Brain, New York, NY USA
[10] Washington Univ, Dept Occupat Therapy, Sch Med, St Louis, MO 63108 USA
[11] Univ Maryland, Maryland Ctr Hlth Equ, College Pk, MD 20742 USA
[12] UC Davis Sch Med, Alzheimers Dis Res Ctr, Sacramento, CA USA
[13] Washington Univ, Publ Hlth Sci Brown Sch, St Louis, MO 63108 USA
[14] Washington Univ, Knight Alzheimer Dis Res Ctr, Neurol, Sch Med, St Louis, MO 63108 USA
[15] Univ Pittsburgh, Sch Nursing, Pittsburgh, PA 15261 USA
[16] Univ Pittsburgh, Sch Med, Alzheimers Dis Res Ctr, Pittsburgh, PA 15261 USA
关键词
African American; recruitment; Alzheimer disease; disparities; racial differences; recruitment strategies; HEALTH DISPARITIES RESEARCH; BRAIN DONATION; DEMENTIA INCIDENCE; AGING RESEARCH; RISK; RECRUITMENT; BARRIERS; RACE; RETENTION; DISCRIMINATION;
D O I
10.1002/alz.12160
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
The Washington University School of Medicine Knight Alzheimer Disease Research Center's "African American Participation in Alzheimer Disease Research: Effective Strategies" Workshop convened to address a major limitation of the ongoing scientific progress regarding Alzheimer's disease and related dementias (ADRD): participants in most ADRD research programs overwhelmingly have been limited to non-Hispanic white persons, thus precluding knowledge as to how ADRD may be represented in non-white individuals. Factors that may contribute to successful recruitment and retention of African Americans into ADRD research were discussed and organized into actionable next steps as described within this report.
引用
收藏
页码:1734 / 1744
页数:11
相关论文
共 64 条
  • [1] The Belmont Report at 40: Reckoning With Time
    Adashi, Eli Y.
    Walters, LeRoy B.
    Menikoff, Jerry A.
    [J]. AMERICAN JOURNAL OF PUBLIC HEALTH, 2018, 108 (10) : 1345 - 1348
  • [2] Alvidrez J, 2019, AM J PUBLIC HEALTH, V109, pS16, DOI [10.2105/ajph.2018.304883, 10.2105/AJPH.2018.304883]
  • [3] Issues and recommendations for the recruitment and retention of older ethnic minority adults into clinical research
    Arean, PA
    GallagherThompson, D
    [J]. JOURNAL OF CONSULTING AND CLINICAL PSYCHOLOGY, 1996, 64 (05) : 875 - 880
  • [4] Alzheimer's Disease In African Americans: Risk Factors And Challenges For The Future
    Barnes, Lisa L.
    Bennett, David A.
    [J]. HEALTH AFFAIRS, 2014, 33 (04) : 580 - 586
  • [5] The Minority Aging Research Study: Ongoing Efforts to Obtain Brain Donation in African Americans without Dementia
    Barnes, Lisa L.
    Shah, Raj C.
    Aggarwal, Neelum T.
    Bennett, David A.
    Schneider, Julie A.
    [J]. CURRENT ALZHEIMER RESEARCH, 2012, 9 (06) : 734 - 745
  • [6] Racial differences in perceived discrimination in a community population of older blacks and whites
    Barnes, LL
    De Leon, CFM
    Wilson, RS
    Bienias, JL
    Bennett, DA
    Evans, DA
    [J]. JOURNAL OF AGING AND HEALTH, 2004, 16 (03) : 315 - 337
  • [7] BERG L, 1988, PSYCHOPHARMACOL BULL, V24, P637
  • [8] Version 3 of the National Alzheimer's Coordinating Center's Uniform Data Set
    Besser, Lilah
    Kukull, Walter
    Knopman, David S.
    Chui, Helena
    Galasko, Douglas
    Weintraub, Sandra
    Jicha, Gregory
    Carlsson, Cynthia
    Burns, Jeffrey
    Quinn, Joseph
    Sweet, Robert A.
    Rascovsky, Katya
    Teylan, Merilee
    Beekly, Duane
    Thomas, George
    Bollenbeck, Mark
    Monsell, Sarah
    Mock, Charles
    Zhou, Xiao Hua
    Thomas, Nicole
    Robichaud, Elizabeth
    Dean, Margaret
    Hubbard, Janene
    Jacka, Mary
    Schwabe-Fry, Kristen
    Wu, Joylee
    Phelps, Creighton
    Morris, John C.
    [J]. ALZHEIMER DISEASE & ASSOCIATED DISORDERS, 2018, 32 (04) : 351 - 358
  • [9] Botvin G., 1994, PSYCHOL ADDICT BEHAV, V8, P116, DOI [DOI 10.1037/0893-164X.8.2.116, 10.1037/0893-164X.8.2.116]
  • [10] Brenowitz W D., 2019, Am. J. Epidemiol