Mothers' lived experiences of support when living with young children with congenital heart defects

被引：39

作者：

Bruce, Elisabeth ^{[1
]}

Lilja, Catrine ^{[1
]}

Sundin, Karin ^{[1
]}

机构：

[1] Umea Univ, Dept Nursing, Ornskoldsvik, Sweden

来源：

JOURNAL FOR SPECIALISTS IN PEDIATRIC NURSING | 2014年 / 19卷 / 01期

关键词：

Children; congenital heart defect; mother; phenomenological-hermeneutic method; support; WHITE-COLLAR EMPLOYEES; QUALITY-OF-LIFE; SOCIAL SUPPORT; DISABLED-CHILDREN; DISEASE; CARE; STRESS; PARENTS; DISABILITY; CAREGIVERS;

D O I：

10.1111/jspn.12049

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

PurposeThe purpose of this study was to illuminate the meanings of support as disclosed by mothers of children with congenital heart defects (CHD). Design and MethodNarrative interviews were conducted with 10 mothers of children with CHD. A phenomenological-hermeneutic method was used for interpretation of the transcribed interviews. ResultsThe comprehensive understanding of mothers' lived experiences of support emerged as the experiences of receiving good support, receiving poor support, and absence of support. Practice ImplicationsMothers receiving person-centered and family-centered care feel more supported and are more likely to adapt to the stresses of parenting a child with CHD.

引用

页码：54 / 67

页数：14

共 54 条

[1] Mothers of Children with Special Health Care Needs: Documenting the Experience of Their Children's Care in the School Setting [J].