'Are you by chance on the spectrum?' Adolescents with autism spectrum disorder making sense of their diagnoses

被引:35
作者
Jones, Jennifer L. [1 ]
Gallus, Kami L. [1 ]
Viering, Kacey L.
Oseland, Lauren M. [2 ]
机构
[1] Oklahoma State Univ, Dept Human Dev & Family Sci, Stillwater, OK 74078 USA
[2] Kansas State Univ, Sch Family Studies & Human Serv, Manhattan, KS 66506 USA
关键词
autism spectrum disorder; adolescents; meaning-making; narratives; qualitative; CHILDREN; PARENTS; STIGMA; DISABILITIES; DIFFERENCE; PEOPLE; MODEL;
D O I
10.1080/09687599.2015.1108902
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
The current phenomenological study aimed to provide a better understanding of how adolescents with autism spectrum disorder (ASD) identify with and make meaning of their diagnosis through exploration of their disability narratives. In order to gain a more comprehensive understanding of how adolescents with ASD negotiate the positive and negative aspects of their diagnoses, social discourse surrounding ASD, as well as their own meaning-making process, the current study explored adolescents' descriptions of ASD and identification with labels of disability. Participants included 10 adolescents with ASD ranging in age from 13 to 20. Three main themes emerged from the qualitative interviews: formation of an ASD narrative; social construction of the label; and confusion regarding whether ASD is a disability. Results of this study indicate the need for reducing social stigma associated with ASD and disability labels.
引用
收藏
页码:1490 / 1504
页数:15
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