Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary

被引：9

作者：

Baji, Petra ^{[1
]}

Brouwer, Werner B. F. ^{[2
,3
]}

van Exel, Job ^{[2
,3
]}

Golicki, Dominik ^{[4
]}

Prevolnik Rupel, Valentina ^{[5
]}

Zrubka, Zsombor ^{[1
,6
]}

Gulacsi, Laszlo ^{[1
,6
]}

Brodszky, Valentin ^{[1
]}

Rencz, Fanni ^{[1
,7
]}

Pentek, Marta ^{[1
,6
]}

机构：

[1] Corvinus Univ Budapest, Dept Hlth Econ, Fovam Ter 8, H-1093 Budapest, Hungary

[2] Erasmus Univ, Erasmus Sch Hlth Policy & Management ESHPM, PO Box 1738, NL-3000 DR Rotterdam, Netherlands

[3] Erasmus Univ, Erasmus Sch Econ ESE, PO Box 1738, NL-3000 DR Rotterdam, Netherlands

[4] Med Univ Warsaw, Dept Expt & Clin Pharmacol, Ul Banacha 1b, PL-02097 Warsaw, Poland

[5] Inst Econ Res, Kardeljeva Ploscad 17, Ljubljana 1000, Slovenia

[6] Obuda Univ, Univ Res & Innovat Ctr, Hlth Econ Res Ctr, Becsi Ut 96-B, H-1034 Budapest, Hungary

[7] Hungarian Acad Sci, Premium Postdoctoral Res Programme, Nador U 7, H-1051 Budapest, Hungary

来源：

QUALITY OF LIFE RESEARCH | 2021年 / 30卷 / 02期

关键词：

Informal care; Burden; Validation; CarerQol; EQ-5D-5L; QUALITY-OF-LIFE; PARENTS; EUROPE; IMPACT; UK;

D O I：

10.1007/s11136-020-02662-8

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Purpose The CarerQol instrument has been designed and validated as an instrument able to measure both the positive and the negative impacts of caregiving on the quality of life of informal caregivers (CarerQol-7D), as well as their general happiness (CarerQol-VAS). The aim of this study was to assess the construct validity of the CarerQol in the Hungarian context. Methods The CarerQol was translated into Hungarian. Subsequently, in a cross-sectional online survey, representative for the general Hungarian population (N = 1000), informal caregivers were identified (N = 149, female 51.2%, mean age 53.2). Clinical, convergent and discriminant validity of the CarerQol were evaluated in relation to the caregivers' and care recipients' EQ-5D-5L health status, and caregiving situation characteristics. Results Average CarerQol-7D and CarerQol-VAS scores were 76.0 (SD 16.2) and 6.8 (SD 2.3), respectively. CarerQol-7D and CarerQol-VAS scores were significantly correlated with caregiving time (r = - 0.257; - 0.212), caregivers' EQ-5D-5L scores (r = 0.453; 0.326) and the CarerQol-7D also with care recipients' EQ-5D-5L scores (r = 0.247). CarerQol-7D scores differed significantly with relevant caregiving characteristics (e.g. nature and severity of care recipients' health status, sharing household) and both the CarerQol-7D and CarerQol-VAS with the overall care experience. Conclusion Our findings confirmed the validity of the Hungarian language version of the CarerQol and support the cross-cultural validity of the instrument. CarerQol-7D scores performed better in distinguishing caregiving situation characteristics than the general happiness measure CarerQol-VAS. Care recipients' health status was only weakly associated with informal caregivers' care-related quality of life and happiness. Caregivers' own health and caregiving circumstances were more strongly associated with these scores.

引用

页码：629 / 641

页数：13

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