"My greatest joy and my greatest heart ache:" Parents' own words on how having a child in the autism spectrum has affected their lives and their families' lives

被引：246

作者：

Myers, Barbara J. ^{[1
]}

Mackintosh, Virginia H. ^{[2
]}

Goin-Kochel, Robin P. ^{[3
]}

机构：

[1] Virginia Commonwealth Univ, Dept Psychol, Richmond, VA 23284 USA

[2] Univ Mary Washington, Fredericksburg, VA USA

[3] Baylor Coll Med, Houston, TX 77030 USA

来源：

RESEARCH IN AUTISM SPECTRUM DISORDERS | 2009年 / 3卷 / 03期

关键词：

Parent; Family; Qualitative method; Themes; Online questionnaire; QUALITY-OF-LIFE; BEHAVIOR PROBLEMS; MENTAL-HEALTH; INTELLECTUAL DISABILITY; POSITIVE PERCEPTIONS; SYNDROME SPECIFICITY; PRESCHOOL-CHILDREN; ASPERGER-SYNDROME; STRESS PROFILES; MOTHERS;

D O I：

10.1016/j.rasd.2009.01.004

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

Parents of children in the autism spectrum wrote an open-ended answer via an online questionnaire to the question, "How has your child in the autism spectrum affected your life and your family's life?" (N = 493). Using a qualitative content analysis, 15 negative themes and 9 positive themes were identified. Themes are subsumed into five clusters: Stress; Child's behavior: Parents' personal well being, work, and marital relationship; Impact on the whole family; and Social isolation. The mix of negative and positive themes is interpreted as a dialectical viewpoint of finding positive meaning to life even while acknowledging the stress and difficulties of having a child with autism. (c) 2009 Elsevier Ltd. All rights reserved.

引用

页码：670 / 684

页数：15

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