Early Assessment and Support Alliance Connections: Community-Based Participatory Research to Develop a Peer-based Early Psychosis Web Resource with Young Adults

被引:0
作者
Raymaker, Dora M. [1 ,3 ]
Sale, Tamara [2 ,3 ]
Rija, Mariam [3 ]
Buekea, Nicholas [3 ]
Caruso, Nybelle [3 ]
Melton, Ryan [1 ]
Cohrs, Natalie [3 ]
Gould, Veronica [1 ,3 ]
Wall, Christina [1 ,3 ]
Scharer, Mirah [1 ,3 ]
机构
[1] Portland State Univ, Portland, OR 97207 USA
[2] Oregon Hlth & Sci Univ, Portland, OR 97201 USA
[3] EASA Connect Design Team, Cologne, Germany
关键词
Early psychosis; Community-based participatory research; Peers; Web accessibility; Web-based intervention; Young adults; MENTAL-HEALTH; PARTNERSHIP; STRATEGIES; DELPHI; IMPACT; LIFE;
D O I
暂无
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background: Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research. Objectives: We used a community-based participatory research (CBPR) approach in partnership with the Early Assessment and Support Alliance (EASA) EP program and Portland State University to develop a peer-driven, web-based, recovery resource. Methods: We used our CBPR process to collaboratively develop the resource and conducted an iterative usability study to test and refine it. Lessons Learned: The resource was well-received and accessible. YA partners emphasize the importance of being prepared to learn about research and one's self, being open to new experiences, and how being co-researchers can help with processing EP experiences for the benefit of one's self and peers. Conclusions: Peer involvement in intervention development may increase usability. It benefits YA and adult co-researchers. We strongly recommend including YA who have experienced EP as co-researchers.
引用
收藏
页码:471 / 480
页数:10
相关论文
共 46 条
[1]  
[Anonymous], 2015, SAGE HDB ACTION RES
[2]  
[Anonymous], PATHW POS FUT EASA C
[3]  
[Anonymous], 2014, PSYCH SCHIZ AD TREAT
[4]  
[Anonymous], 2003, COMMUNITY BASED PART
[5]   Internet use and stigmatized illness [J].
Berger, M ;
Wagner, TH ;
Baker, LC .
SOCIAL SCIENCE & MEDICINE, 2005, 61 (08) :1821-1827
[6]   The effectiveness of peer support groups in psychosis: a randomized controlled trial [J].
Castelein, S. ;
Bruggeman, R. ;
van Busschbach, J. T. ;
van der Gaag, M. ;
Stant, A. D. ;
Knegtering, H. ;
Wiersma, D. .
ACTA PSYCHIATRICA SCANDINAVICA, 2008, 118 (01) :64-72
[7]  
Center for Plain Language, WHAT IS PLAIN LANG
[8]   Peer support among persons with severe mental illnesses: a review of evidence and experience [J].
Davidson, Larry ;
Bellamy, Chyrell ;
Guy, Kimberly ;
Miller, Rebecca .
WORLD PSYCHIATRY, 2012, 11 (02) :123-128
[9]   The "what" and "why" of goal pursuits: Human needs and the self-determination of behavior [J].
Deci, EL ;
Ryan, RM .
PSYCHOLOGICAL INQUIRY, 2000, 11 (04) :227-268
[10]  
Early Assessment and Support Alliance, EARL ASS SUPP ALL