Health-related quality of life in sarcoidosis

被引：8

作者：

Korenromp, Ingrid H. E. ^{[1
]}

van de Laar, Mart A. F. J. ^{[2
,3
]}

机构：

[1] St Antonius Hosp, Dept Pulmonol, ILD Ctr Excellence, NL-3435 CM Nieuwegein, Netherlands

[2] Med Spectrum Twente, Arthrit Ctr Twente, Enschede, Netherlands

[3] Univ Twente, NL-7500 AE Enschede, Netherlands

来源：

CURRENT OPINION IN PULMONARY MEDICINE | 2014年 / 20卷 / 05期

关键词：

computer-adapted test; patient-reported outcome measures; quality-adjusted life years; quality of care; DOUBLE-BLIND; FATIGUE; QUESTIONNAIRE;

D O I：

10.1097/MCP.0000000000000079

中图分类号：

R56 [呼吸系及胸部疾病];

学科分类号：

摘要：

Purpose of review The review presents an overview of the scientific publications in the field of health-related quality of life (HRQL) in sarcoidosis. Recent findings Literature on HRQL in sarcoidosis is limited. HRQL was mainly used as a primary or secondary endpoint in intervention studies. Moreover, most studies have measured HRQL in sarcoidosis by means of the generic questionnaire 36-Item Short-Form Health Survey. Sarcoidosis-specific questionnaires and computer-adapted testing are innovative approaches to the field. Summary HRQL as a primary or secondary outcome in sarcoidosis studies is still scarce. In addition to the proper definition of the concept, the mode of measurement of HRQL remains a matter of debate. Because health-economical evaluations require data on gained quality of life, future studies on sarcoidosis should include HRQL as the study endpoint.

引用

页码：503 / 507

页数：5

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