The lived experience of dysphagia following non-surgical treatment for head and neck cancer

被引:85
作者
Nund, Rebecca L. [1 ,2 ]
Ward, Elizabeth C. [1 ,2 ]
Scarinci, Nerina A. [1 ]
Cartmill, Bena [2 ,3 ]
Kuipers, Pim [2 ,4 ]
Porceddu, Sandro V. [1 ,3 ]
机构
[1] Univ Queensland, Brisbane, Qld, Australia
[2] Queensland Hlth, Brisbane, Qld, Australia
[3] Princess Alexandra Hosp, Brisbane, Qld 4102, Australia
[4] Griffith Univ, Brisbane, Qld 4111, Australia
关键词
Dysphagia; head and neck cancer; radiotherapy; psychosocial effects; qualitative research; QUALITY-OF-LIFE; FUNCTIONAL OUTCOMES; RADIOTHERAPY; IMPACT;
D O I
10.3109/17549507.2013.861869
中图分类号
R36 [病理学]; R76 [耳鼻咽喉科学];
学科分类号
100104 ; 100213 ;
摘要
The prevalence and severity of dysphagia in people treated non-surgically for primary head and neck cancer (HNC) is well documented. However, few studies have looked beyond the physiological impairment to explore the lived experience of dysphagia in the post-treatment period of HNC. The current study adopted a person-centred, qualitative approach to describe the experiences of people living with dysphagia in the months and years following non-surgical treatment for HNC. Using maximum variation sampling, 24 participants who had undergone radiotherapy treatment for HNC were recruited. Individual interviews were conducted to explore the impact of dysphagia on participants' everyday lives. The themes identified included: (1) physical changes related to swallowing; (2) emotions evoked by living with dysphagia; (3) altered perceptions and changes in appreciation of food; and (4) personal and lifestyle impacts. The data revealed the breadth and significance of the impact of dysphagia on the lives of people treated curatively for HNC. Assessment and management in the post-treatment period must be sufficiently holistic to address both the changing physical states and the psychosocial needs of people with dysphagia following HNC. Rehabilitation services which focus only on impairment-based management will fail to fully meet the support needs of this clinical population.
引用
收藏
页码:282 / 289
页数:8
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