Content analysis of identity challenges in patients with haemophilia: A qualitative study

被引:6
作者
Dolatkhah, Roya [1 ]
Shabanloei, Reza [2 ]
Ebrahimi, Hossein [3 ]
Ghasempour, Mostafa [2 ]
机构
[1] Tabriz Univ Med Sci, Hematol & Oncol Res Ctr, Tabriz, Iran
[2] Tabriz Univ Med Sci, Sina Educ Res & Treatment Ctr, Nursing & Midwifery Fac, Dept Med Surg Nursing, Tabriz, Iran
[3] Tabriz Univ Med Sci, Nursing & Midwifery Fac, Dept Psychiat Nursing, Tabriz, Iran
关键词
challenge; content analysis; identity; nurses; nursing; qualitative study; CHRONIC-FATIGUE-SYNDROME; OF-LIFE; PSYCHOLOGICAL OWNERSHIP; CHRONIC ILLNESS; HEALTH; DEPRESSION; PEOPLE;
D O I
10.1002/nop2.761
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Aims Inherited bleeding diseases greatly affect education, working, job, social activities and quality of life. We aimed to discover the sources of identity challenges among patients with Haemophilia. Design The present study has been designed and performed as a qualitative content analysis research. Methods Participants were purposively selected from haemophilia patients referred to our clinic during one year, from March 2018 to April 2019. Data collection was done through semi-structured, in-depth interviews using purposeful sampling. Data were analysed based on Granheme and Landman method. The main categories were fear of rejection, losing social roles, discrimination and stigma and marriage breakdown. Results Patients with haemophilia encounter several challenges due to physical and social constraints caused by the disease. Such challenges result in disturbances in the self-identity of the patients. Conclusion According to the results of this study, the nurses should plan to have attention to the patients with haemophilia, based on more protection and better supports.
引用
收藏
页码:1444 / 1451
页数:8
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