Searching for the Impact of Participation in Health and Health Research: Challenges and Methods

被引：32

作者：

Harris, Janet ^{[1
]}

Cook, Tina ^{[2
]}

Gibbs, Lisa ^{[3
]}

Oetzel, John ^{[4
]}

Salsberg, Jon ^{[5
]}

Shinn, Carolynne ^{[6
]}

Springett, Jane ^{[7
]}

Wallerstein, Nina ^{[8
]}

Wright, Michael ^{[9
]}

机构：

[1] Univ Sheffield, Sch Hlth & Related Res, Sheffield S1 4DA, S Yorkshire, England

[2] Liverpool Hope Univ, Dept Disabil & Educ, Hope Pk, Liverpool L16 9JD, Merseyside, England

[3] Univ Melbourne, Ctr Hlth Equ, Level 5,207 Bouverie St, Carlton, Vic 3053, Australia

[4] Univ Waikato, Waikato Management Sch, Private Bag 3105, Hamilton 3240, New Zealand

[5] Univ Limerick, Grad Entry Med Sch, Limerick V94 T9PX, Ireland

[6] New Hampshire Div Hlth & Human Serv, 105 Pleast St, Concord, NH 03301 USA

[7] Univ Alberta, Sch Publ Hlth, 3-289 Edmonton Clin Hlth Acad,11405-87 Ave, Edmonton, AB T6G 2C9, Canada

[8] Univ New Mexico, Coll Populat Hlth, Albuquerque, NM 87131 USA

[9] Catholic Univ Appl Sci Berlin, Inst Social Hlth, Kopenicker Allee 39-5Z, D-10318 Berlin, Germany

来源：

BIOMED RESEARCH INTERNATIONAL | 2018年 / 2018卷

关键词：

COMMUNITY ENGAGEMENT; SYSTEMATIC REVIEWS; OUTCOMES; INTERVENTIONS; SCIENCE; PATIENT; MODEL;

D O I：

10.1155/2018/9427452

中图分类号：

Q81 [生物工程学（生物技术）]; Q93 [微生物学];

学科分类号：

071005 ; 0836 ; 090102 ; 100705 ;

摘要：

Internationally, the interest in involving patients and the public in designing and delivering health interventions and researching their effectiveness is increasing. Several systematic reviews of participation in health research have recently been completed, which note a number of challenges in documenting the impact of participation. Challenges include working across stakeholders with different understandings of participation and levels of experience in reviewing; comparing heterogeneous populations and contexts; configuring findings from often thin descriptions of participation in academic papers; and dealing with different definitions of impact. This paper aims to advance methods for systematically reviewing the impact of participation in health research, drawing on recent systematic review guidance. Practical examples for dealing with issues at each stage of a review are provided based on recent experience. Recommendations for improving primary research on participation in health are offered and key points to consider during the review are summarised.

引用

页数：12

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