Measuring trust in medical researchers

被引:108
作者
Hall, Mark A. [1 ]
Camacho, Fabian
Lawlor, Janice S.
DePuy, Venita
Sugarman, Jeremy
Weinfurt, Kevin
机构
[1] Wake Forest Univ, Dept Social Sci & Hlth Policy, Winston Salem, NC 27157 USA
[2] Johns Hopkins Univ, Dept Med, Baltimore, MD USA
[3] Phoebe R Berman Bioeth Inst, Baltimore, MD USA
[4] Duke Clin Res Inst, Ctr Clin & Genet Econ, Durham, NC USA
关键词
trust in medical researchers; scale development; willingness to participate in medical research;
D O I
10.1097/01.mlr.0000228023.37087.cb
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Concern is widespread that the public's and participants' trust in medical research is threatened, but few empirical measures of research trust, exist. This project aims to enable more rigorous study of researcher trust by developing and testing appropriate survey measures. Methods: Survey items were developed based on a conceptual model of the primary domains of researcher trust (safety, fidelity, honesty, global trust). Pilot, testing was: conducted on a regional convenience sample of adults (n = 124). Exploratory factor analyses of the data were performed, and an item selection procedure reduced the number of survey questions. A final set of 12 items was validated, and a 4-item short version of the researcher trust scale was selected and tested in a national,web-based survey of asthma and diabetes patients (n = 3 623)., Further factor, analysis and validation were performed on this larger sample. Results: Both the full and short scales have a single-factor structure with acceptable internal reliability (alphas of 0.87 [12 items] and 0.72 [4 items]). Trust in physician researchers and trust in medical researchers generally were found not to be separate constructs. In the national sample, the short scale was positively associated with better health status, prior participation in medical, research, and willingness to participate in a hypothetical medical research study, and negatively associated with African-American race and higher education. Conclusions: Trust in medical researchers is a measurable single-factor construct including trust in safety, researcher fidelity, and honesty. This new scale provides an empirical tool for informing the ethics and public policy of medical research.
引用
收藏
页码:1048 / 1053
页数:6
相关论文
共 26 条
[1]  
*AAMC TASK FORC FI, PROT SUBJ PRES TRUST
[2]   An exploration of patients' trust in physicians in training [J].
Bonds, DE ;
Foley, KL ;
Dugan, E ;
Hall, MA ;
Extrom, P .
JOURNAL OF HEALTH CARE FOR THE POOR AND UNDERSERVED, 2004, 15 (02) :294-306
[3]   Attitudes and beliefs of African Americans toward participation in medical research [J].
Corbie-Smith, G ;
Thomas, SB ;
Williams, MV ;
Moody-Ayers, S .
JOURNAL OF GENERAL INTERNAL MEDICINE, 1999, 14 (09) :537-546
[4]   Distrust, race, and research [J].
Corbie-Smith, G ;
Thomas, SB ;
St George, DMM .
ARCHIVES OF INTERNAL MEDICINE, 2002, 162 (21) :2458-2463
[5]  
de Vet HCW, 2005, QUAL LIFE RES, V14, P1203, DOI 10.1007/s11136-004-5742-3
[6]   Conflict of interest and the public trust [J].
DeAngelis, CD .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2000, 284 (17) :2237-2238
[7]   Comparing data from online and face-to-face surveys [J].
Duffy, B ;
Smith, K ;
Terhanian, G ;
Bremer, J .
INTERNATIONAL JOURNAL OF MARKET RESEARCH, 2005, 47 (06) :615-639
[8]  
FARMER DF, 2006, IN PRESS J HLTH CARE, V17
[9]  
Gatter Robert, 2003, Emory Law J, V52, P327
[10]  
Gorsuch R., 2015, Factor analysis / by, V2nd