Content of advance care planning among Japanese elderly people living at home: A qualitative study

被引:20
作者
Hirakawa, Yoshihisa [1 ]
Chiang, Chifa [1 ]
Hilawe, Esayas Haregot [1 ]
Aoyama, Atsuko [1 ]
机构
[1] Nagoya Univ, Dept Publ Hlth & Hlth Syst, Grad Sch Med, Nagoya, Aichi 4648601, Japan
关键词
End-of-life care; Qualitative study; Decision making; Living will; Proxy; OF-LIFE CARE; RANDOMIZED CONTROLLED-TRIAL; OLDER-PEOPLE; END; SATISFACTION; INDIVIDUALS; COMMUNITY; HEALTH; ACCULTURATION; PREFERENCE;
D O I
10.1016/j.archger.2017.01.007
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
Purpose of study: Elderly peoples' values and preferences for end-of-life care have not yet known in details. The aim of the present study was to investigate the end-of-life wishes and decision making among Japanese elderly people who required home care services. The study was designed to qualitative research strategies, using face to face interview data recorded in nursing care records, with a focus on advance care planning. Design and methods: A total of 102 elderly people (47 males, 55 females) of 6 home care support offices in Hyogo prefecture participated. Results and implications: We finally extracted the following 5 themes: anxiety about the future, abandonment of control, clinging to current daily life, precarious mutual support, delegating decision-making. While elderly people living at home generally feel anxious and fearful about the future, they seemed to try to avoid thinking too seriously about possible complications in their life. They also tend to leave end-of-life decision to someone else, and their decisions tend to change as they advance in age and as their condition deteriorates. Our findings suggest that medical professionals and care managers always support their patients' decisions, allowing for the views of the informal caregivers on whom elderly people rely for decision-making. (C) 2017 Elsevier B.V. All rights reserved.
引用
收藏
页码:162 / 168
页数:7
相关论文
共 32 条
[1]   Quality of life in older outpatients living alone in the community in Italy [J].
Bilotta, Claudio ;
Bowling, Ann ;
Nicolini, Paola ;
Case, Alessandra ;
Vergani, Carlo .
HEALTH & SOCIAL CARE IN THE COMMUNITY, 2012, 20 (01) :32-41
[2]   Acculturation and end-of-life decision making: Comparison of Japanese and Japanese-American focus groups [J].
Bito, Seiji ;
Matsumura, Shinji ;
Singer, Marjorie Kagawa ;
Meredith, Lisa S. ;
Fukuhara, Shunichi ;
Wenger, Neil S. .
BIOETHICS, 2007, 21 (05) :251-262
[3]   Life satisfaction among older people (65+) with reduced self-care capacity: the relationship to social, health and financial aspects [J].
Borg, C ;
Hallberg, IR ;
Blomqvist, K .
JOURNAL OF CLINICAL NURSING, 2006, 15 (05) :607-618
[4]   Life satisfaction in 6 European countries:: The relationship to health, self-esteem, and social and financial resources among people (aged 65-89) with reduced functional capacity [J].
Borg, Christel ;
Fagerstroem, Cecilia ;
Balducci, Cristian ;
Burholt, Vanessa ;
Ferring, Dieter ;
Weber, Germain ;
Wenger, Clare ;
Holst, Goeran ;
Hallberg, Ingalill R. .
GERIATRIC NURSING, 2008, 29 (01) :48-57
[5]   Randomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to ask questions about prognosis and end-of-life care [J].
Clayton, Josephine M. ;
Butow, Phyllis N. ;
Tattersall, Martin H. N. ;
Devine, Rhonda J. ;
Simpson, Judy M. ;
Aggarwal, Ghauri ;
Clark, Katherine J. ;
Currow, David C. ;
Elliott, Louise M. ;
Lacey, Judith ;
Lee, Philip G. ;
Noel, Michael A. .
JOURNAL OF CLINICAL ONCOLOGY, 2007, 25 (06) :715-723
[6]   The impact of advance care planning on end of life care in elderly patients: randomised controlled trial [J].
Detering, Karen M. ;
Hancock, Andrew D. ;
Reade, Michael C. ;
Silvester, William .
BMJ-BRITISH MEDICAL JOURNAL, 2010, 340 :847
[7]  
Esbensen B. A., 2015, SCANDINAVIAN J CARIN
[8]   Associations between Japanese People's Concern about Family Caregiver Burden and Preference for End-of-Life Care Location [J].
Fukui, Sakiko ;
Fujita, Junko ;
Yoshiuchi, Kazuhiro .
JOURNAL OF PALLIATIVE CARE, 2013, 29 (01) :22-28
[9]   Japanese People's Preference for Place of End-of-Life Care and Death: A Population-Based Nationwide Survey [J].
Fukui, Sakiko ;
Yoshiuchi, Kazuhiro ;
Fujita, Junko ;
Sawai, Minako ;
Watanabe, Minako .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2011, 42 (06) :882-892
[10]   Predicting nursing home admission in the U.S: A meta-analysis [J].
Gaugler J.E. ;
Duval S. ;
Anderson K.A. ;
Kane R.L. .
BMC Geriatrics, 7 (1)