The Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

被引:5
作者
Al-Mayouf, Sulaiman M. [1 ]
AlE'ed, Ashwaq [1 ]
Muzaffer, Mohammed [2 ]
Consolaro, Alessandro [3 ,4 ]
Bovis, Francesca [3 ]
Ruperto, Nicolino [3 ]
机构
[1] Alfaisal Univ, King Faisal Specialist Hosp & Res Ctr, Dept Pediat Rheumatol, POB 3354, Riyadh 11211, Saudi Arabia
[2] King Abdualziz Univ Hosp, Dept Pediat, Jeddah, Saudi Arabia
[3] Ist Giannina Gaslini, Clin Pediat & Reumatol, Paediat Rheumatol Int Trials Org PRINTO, Via Gaslini 5, I-16147 Genoa, Italy
[4] Univ Genoa, Dipartimento Pediat, Genoa, Italy
关键词
Juvenile idiopathic arthritis; Disease status; Functional ability; Health-related quality of life; JAMAR; DISABILITY MEASUREMENT TOOL; IDIOPATHIC ARTHRITIS; RHEUMATOID-ARTHRITIS; CHILDREN; SCALES; PARENT;
D O I
10.1007/s00296-018-3979-3
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Arabic language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic and clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (27.0% systemic JIA, 23.0% oligoarticular, 25.0% RF negative polyarthritis, and 25.0% other categories) and 100 healthy children, were enrolled in one paediatric rheumatology centre. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research.
引用
收藏
页码:43 / 49
页数:7
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