Post-transplant adjustment - The later years

被引:22
作者
Fredericks, Emily M. [1 ]
Zelikovsky, Nataliya [2 ,3 ]
Aujoulat, Isabelle [4 ]
Hames, Anna [5 ]
Wray, Jo [6 ]
机构
[1] Univ Michigan, Dept Pediat, CS Mott Childrens Hosp, Ann Arbor, MI 48109 USA
[2] La Salle Univ, Dept Psychol, Philadelphia, PA 19141 USA
[3] Childrens Hosp Philadelphia, Philadelphia, PA 19104 USA
[4] Catholic Univ Louvain, Inst Hlth & Soc IRSS, B-1200 Brussels, Belgium
[5] Kings Coll Hosp London, Inst Liver Studies, London SE5 8RX, England
[6] Great Ormond St Hosp Sick Children, Crit Care & Cardioresp Div, London WC1N 3JH, England
关键词
adolescents; adherence; health-related quality of life; psychological adjustment; QUALITY-OF-LIFE; LIVER-TRANSPLANT RECIPIENTS; LONG-TERM SURVIVORS; STAGE RENAL-DISEASE; PEDIATRIC HEART; SELF-MANAGEMENT; PSYCHOSOCIAL ADJUSTMENT; NEUROCOGNITIVE OUTCOMES; COGNITIVE PERFORMANCE; POSTTRAUMATIC-STRESS;
D O I
10.1111/petr.12366
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
As survival rates for pediatric solid organ transplantation have continued to improve, researchers and healthcare providers have increasingly focused on understanding and enhancing the HRQOL and psychosocial functioning of their patients. This manuscript reviews the psychosocial functioning of pediatric transplant recipients during the later years, defined as more than three yr post-transplant, and focuses on the day-to-day impact of living with a transplant after the immediate period of adjustment and early years after surgery. Key topics reviewed include HRQOL, cognitive functioning, impact on the family, regimen adherence, and transition of responsibility for self-management tasks. Overall, pediatric transplant recipients evidence impairment in HRQOL, neuropsychological outcomes, and family functioning as compared to non-transplant recipients. However, the degree of impairment is influenced by a variety of factors including, disease severity, age, solid organ type, and study methodologies. Studies are limited by small samples, cross-sectional design, and the lack of universal assessment battery to allow for comparisons across solid organ populations. Areas for future research are discussed.
引用
收藏
页码:675 / 688
页数:14
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