Patient-Reported Outcomes Measurement Information System (PROMIS): Efficient, standardized tools to measure self-reported health and quality of life

被引：155
作者：
Bevans, Margaret [1 ]
Ross, Alyson [1 ]
Cella, David [2 ,3 ]
机构：
[1] NIH, Dept Nursing, Ctr Clin, Bethesda, MD 20892 USA
[2] Northwestern Univ, Feinberg Sch Med, Dept Med Social Sci, Chicago, IL 60611 USA
[3] Inst Publ Hlth & Med, Ctr Patient Ctr Outcomes, Chicago, IL USA
来源：
NURSING OUTLOOK | 2014年 / 62卷 / 05期
关键词：
Item response theory; Measurements; Patient-centered outcomes; Web-based data collection; ITEM RESPONSE; IMPACT; COMMUNICATION; ASSESSMENTS; MANAGEMENT; PROVIDERS; SYMPTOMS; TRIALS;
D O I：
10.1016/j.outlook.2014.05.009
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
All nurses are interested in the effects of diseases and treatments on individuals. Patient-reported outcome (PRO) measures are used to obtain self-reported information about symptoms, function, perceptions, and experiences. However, there are challenges to their use, including multiple measures of the same concept, widely varying quality, excessive length and complexity, and difficulty comparing findings across studies and conditions. To address these challenges, the National Institutes of Health funded the Patient-Reported Outcomes Measurement Information System (PROMIS), a web-based repository of valid and reliable PRO measures of health concepts relevant to clinician and researchers. Through the PROMIS Assessment Center, clinicians and researchers can access PRO measures, administer computerized adaptive tests, collect self-report data, and report instant health assessments. The purpose of this article was to summarize the development and validation of the PROMIS measures and to describe its current functionality as it relates to nursing science.
引用
收藏
页码：339 / 345
页数：7
相关论文
共 37 条
[1]   Incorporating the patient's perspective into drug development and communication: An ad hoc task force report of the patient-reported outcomes (PRO) harmonization group meeting at the Food and Drug Administration, February 16, 2001 [J].
Acquadro, C ;
Berzon, R ;
Dubois, D ;
Leidy, NK ;
Marquis, P ;
Revicki, D ;
Rothman, M .
VALUE IN HEALTH, 2003, 6 (05) :522-531
[2]  
[Anonymous], OFF REC WHO
[3]  
[Anonymous], INSTR AV US ASS CTR
[4]   Monitoring population health for Healthy People 2020: evaluation of the NIH PROMISA® Global Health, CDC Healthy Days, and satisfaction with life instruments [J].
Barile, John P. ;
Reeve, Bryce B. ;
Smith, Ashley Wilder ;
Zack, Matthew M. ;
Mitchell, Sandra A. ;
Kobau, Rosemarie ;
Cella, David F. ;
Luncheon, Cecily ;
Thompson, William W. .
QUALITY OF LIFE RESEARCH, 2013, 22 (06) :1201-1211
[5]   Recommendations for Incorporating Patient-Reported Outcomes Into Clinical Comparative Effectiveness Research in Adult Oncology [J].
Basch, Ethan ;
Abernethy, Amy P. ;
Mullins, C. Daniel ;
Reeve, Bryce B. ;
Smith, Mary Lou ;
Coons, Stephen Joel ;
Sloan, Jeff ;
Wenzel, Keith ;
Chauhan, Cynthia ;
Eppard, Wayland ;
Frank, Elizabeth S. ;
Lipscomb, Joseph ;
Raymond, Stephen A. ;
Spencer, Merianne ;
Tunis, Sean .
JOURNAL OF CLINICAL ONCOLOGY, 2012, 30 (34) :4249-4255
[6]  
Beck CB, 2001, POLLUT ENG, V33, P5
[7]   Difference in method of administration did not significantly impact item response: an IRT-based analysis from the Patient-Reported Outcomes Measurement Information System (PROMIS) initiative [J].
Bjorner, Jakob B. ;
Rose, Matthias ;
Gandek, Barbara ;
Stone, Arthur A. ;
Junghaenel, Doerte U. ;
Ware, John E., Jr. .
QUALITY OF LIFE RESEARCH, 2014, 23 (01) :217-227
[8]   Reporting of Patient-Reported Outcomes in Randomized Trials The CONSORT PRO Extension [J].
Calvert, Melanie ;
Blazeby, Jane ;
Altman, Douglas G. ;
Revicki, Dennis A. ;
Moher, David ;
Brundage, Michael D. .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2013, 309 (08) :814-822
[9]   The Patient-Reported Outcomes Measurement Information System (PROMIS) Progress of an NIH roadmap cooperative group during its first two years [J].
Cella, David ;
Yount, Susan ;
Rothrock, Nan ;
Gershon, Richard ;
Cook, Karon ;
Reeve, Bryce ;
Ader, Deborah ;
Fries, James F. ;
Bruce, Bonnie ;
Rose, Mattias .
MEDICAL CARE, 2007, 45 (05) :S3-S11
[10]   The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008 [J].
Cella, David ;
Riley, William ;
Stone, Arthur ;
Rothrock, Nan ;
Reeve, Bryce ;
Yount, Susan ;
Amtmann, Dagmar ;
Bode, Rita ;
Buysse, Daniel ;
Choi, Seung ;
Cook, Karon ;
DeVellis, Robert ;
DeWalt, Darren ;
Fries, James F. ;
Gershon, Richard ;
Hahn, Elizabeth A. ;
Lai, Jin-Shei ;
Pilkonis, Paul ;
Revicki, Dennis ;
Rose, Matthias ;
Weinfurt, Kevin ;
Hays, Ron .
JOURNAL OF CLINICAL EPIDEMIOLOGY, 2010, 63 (11) :1179-1194
1234